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304 total results
Comments (293)
Kevzara is now an option for me since it was FDA approved for PMR in February...
https://connect.mayoclinic.org/comment/1171767/
approved for PMR when I was offered treatment ... 2019, Actemra was FDA approved for GCA ... ;as if" I had the diagnosis of GCA ... https://www.actemra.com/gca/considerations ... /gca.html#:~:text=ACTEMRA%20is%20the
Discussion: PMR savvy doctors in Portland Oregon
Support Group: Polymyalgia Rheumatica (PMR)
Posted: 5 days ago
It basically says the same thing I was trying to explain. I know very little about...
https://connect.mayoclinic.org/comment/1140669/
FDA approval for Actemra to treat GCA ... considered to be "experimental treatments ... medication that works" for PMR/GCA
Discussion: Actemra coverage on Medicare in California?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 12 10:24pm
While I would Never wish to argue or offer disbelief of any persons health decisions; and...
https://connect.mayoclinic.org/comment/1151904/
decision to take or not any med or treatment ... handicap from the recent gift of PMR/GCA ... mRNA use in a Cancer related Drug Treatment ... Wishing all of you PMR/GCA and other
Discussion: Need to decide to get a Covid Shot while I have PMR.
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Oct 4 1:40pm
Sometimes I'm reluctant to say which biologic because tapering off prednisone wasn't simply a matter of...
https://connect.mayoclinic.org/comment/1131813/
was done with this biologic to treat GCA ... diagnosis was PMR without much evidence of GCA ... would be treated "as if" I had GCA ... has only been FDA approved for the treatment ... of GCA.
Discussion: Any Tips For Tapering Off Prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 27 2:19pm
It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...
https://connect.mayoclinic.org/comment/1150891/
not saying you don't have PMR/GCA ... reason why you can't have both PMR/GCA ... treated as a medical emergency just like GCA ... me on Humira which was "optimal treatment
Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Oct 2 5:13pm
No real insight except to say Actemra works well for me. I'm glad you were able...
https://connect.mayoclinic.org/comment/1144577/
to "long term" or lifetime treatment ... restricted to 1 year of Actemra for the treatment ... of GCA regardless of whether Actemra
Discussion: Is progress being made in understanding PMR/GCA?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Sep 20 11:41am
did you have a biopsy? I did not study up to much on GCA but I...
https://connect.mayoclinic.org/comment/1130508/
I did not study up to much on GCA but ... At least your treatment plan sounds ... like the correct treatment for GCA.
Discussion: GCA without temporal involvement
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 25 12:14pm
Welcome @jacquelineminix, I'm sorry to hear you joined the Giant Cell Arteritis (GCA) club. You are...
https://connect.mayoclinic.org/comment/1130673/
you joined the Giant Cell Arteritis (GCA ... through the different discussions on GCA ... search=GCA Here's some educational ... information if you want to learn more about GCA ... books/NBK459376/ Have you started a treatment
Discussion: Could your PMR have been a result of the Covid mRNA vaccine?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 25 3:59pm
Hi @mzamyl, my rheumatologist told me that tapering is a fine balancing act. A doctor friend...
https://connect.mayoclinic.org/comment/694930/
prednisone is needed - with PMR and GCA ... Eventually PMR and GCA go away. ... with this disease before there was a treatment
Discussion: How did you cope with the side effects tapering off prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 31, 2022
@joeblo746, If the 20 mg doesn't get it done for you it's time to have a...
https://connect.mayoclinic.org/comment/738571/
that have had Giant Cell Arteritis (GCA ... their PMR generally have to start treatment
Discussion: PMR Dosages and Managing Symptoms
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Aug 17, 2022
I sympathize with you! I was diagnosed with PMR and took prednisone for 13 years before...
https://connect.mayoclinic.org/comment/808858/
Therein lies the problem with long term treatment ... Even GCA is difficult to diagnose after
Discussion: PMR and RA
Support Group: Autoimmune Diseases
Posted: Feb 9, 2023
Here's my understanding of what I will be dealing with in terms of the payment schemes...
https://connect.mayoclinic.org/comment/832149/
will cover just under 4 months of treatment ... prescription for Actemra to treat GCA ... combination of PMR and non-cranial GCA ... GCA only indicated by blood markers ... after weeks to months of prednisone treatment
Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 26, 2023