Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
303 total results
Comments (287)
Welcome @cathiee, A member in another discussion shared a link to the MOG Project website that...
There are also several discussions on treatments ... for CIDP that you might find of interest ... search=CIDP+treatments.
Support Group: Autoimmune Diseases
Posted: Aug 4, 2024
Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...
the first line agents effective in CIDP ... DADS-M while patients with DADS-I or CIDP ... do not respond well to first-line CIDP ... treatments." -- Treatment Approaches ... for Atypical CIDP: https://www.frontiersin.org
Support Group: Neuropathy
Posted: Nov 28, 2022
The brand name product used in my IVIG infusion is Gamunex - C. This is first-line...
This is first-line treatment for CIDP ... to maximizing the results of IVIG treatment ... The same is likely true for CIDP patients
Support Group: Neuropathy
Posted: Feb 21 11:21am
sounds like cidp , i have over 15 years ,same symptons i have , Must do...
sounds like cidp , i have over 15 years ... punture to confirm ,no cure but have treatments
Support Group: Autoimmune Diseases
Posted: Feb 9 8:39am
Thanks. I have reached out to GARD. NORD did not seem to have a lot of...
seem to have a lot of resources for CIDP ... someone who is well versed in those treatments
Support Group: Autoimmune Diseases
Posted: Feb 9 4:17pm
@gailannr I found this explanation: What is CIDP? In CIDP, the immune system mistakenly targets and...
I found this explanation: What is CIDP ... In CIDP, the immune system mistakenly ... over time and doesn’t go away without treatment ... ., a neurologist and specialist in CIDP ... treatment at Mayo Clinic.
Support Group: Neuropathy
Posted: Dec 28, 2025
I was diagnosed with CIDP around two years ago. I am currently doing IVIG treatments. They...
I was diagnosed with CIDP around two ... I am currently doing IVIG treatments ... They confirmed it was CIDP by doing ... I’m just wondering if anyone with CIDP ... and I’m not sure if it’s related to CIDP
Discussion: CIDP Diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 18 9:25am
@allessio77 mine is complicated. Had EMG in 9/23. My neuropathy was getting worse quickly since that...
2007 DX w BC, late effect from 1981 treatments ... Never once during treatment experience ... An indicator for CIDP. ... they specialize in DX & treating CIDP ... Isn’t that one of the tx’s for CIDP?
Support Group: Neuropathy
Posted: Nov 13, 2025
My husband was given 5 IVIG treatments and although he had no reactions from them after...
My husband was given 5 IVIG treatments ... reactions from them after the fifth treatment ... diagnosis is wrong, he does not have CIDP
Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...
have had a combination of GBS and CIDP ... in the hospital and now I feel the CIDP ... Once you’re established there and treatment ... you should be able to continue your treatments ... significant progress with whatever treatment
Support Group: Neuropathy
Posted: Nov 9, 2024
I made a post about it months ago after my neurologist brought it up to me....
news-events-human-drugs/fda-approves-treatment-chronic-inflammatory-demyelinating-polyneuropathy-cidp-adults
Support Group: Autoimmune Diseases
Posted: Sep 17, 2024
@cyp238ress I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves...
surgery until you try other non-surgical treatments ... 8 years trying to get answers and treatment ... If CIDP is a possibility, you may need
Support Group: Spine Health
Posted: Jul 24, 2024
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
opportunity and insight into how the treatments ... many different symptoms, causes and treatments ... There are some discussions on CIDP along ... #39;s a link to the discussions on CIDP ... search=CIDP.
Support Group: Neuropathy
Posted: Jun 8, 2024