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Comments (64)
@harleewine There's also thread here for CCUS. (Which is what I think many of us with...
https://connect.mayoclinic.org/comment/1528338/
harleewine There's also thread here for CCUS ... connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus
Hi @mlarneson, I add my welcome. I moved your question to this similar discussion: - Anyone...
https://connect.mayoclinic.org/comment/974609/
Cytopenia of Undetermined Significance (CCUS ... connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus ... connect with other members living with CCUS
@audrey123 Welcome to Connect. There are members who share this diagnosis. https://connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus/ Some members who have...
https://connect.mayoclinic.org/comment/1101150/
connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus ... /
Some members who have posted CCUS ... you were diagnosed in 218, has your CCUS
CCUS , Clonal cytopenia of undetermined significance
https://connect.mayoclinic.org/comment/853720/
CCUS , Clonal cytopenia of undetermined
I’m the individual who has CCUS.
https://connect.mayoclinic.org/comment/970128/
I’m the individual who has
CCUS.
Hi @pkarnick66 Welcome to Connect. Clonal cytopenia of unknown significance (CCUS) is a blood condition characterized...
https://connect.mayoclinic.org/comment/1540336/
cytopenia of unknown significance (CCUS ... Most blood conditions such as CCUS or ... members who have been diagnosed with CCUS ... search=CCUS
What has your doctor
I've had a diagnosis of Clonal Cytopenia of undetermined significance since 2018. (Biopsy and genetic sequencing...
https://connect.mayoclinic.org/comment/1101032/
CCUS males one highly susceptible to ... Does anyone else on this site have CCUS
I have CCUS with only the TET2 mutation, but with a VAF of 86%. Low white...
https://connect.mayoclinic.org/comment/1508964/
I have CCUS with only the TET2 mutation ... Vanderbilt has a biorepository for CCUS ... Have seen one clinical trial for CCUS
Hi @nigel7 and welcome to Connect! So glad you dropped into the conversation to share your...
https://connect.mayoclinic.org/comment/1510332/
conversation to share your experience with CCUS ... I recently read an article on CCUS that ... link to AHS Publications article on CCUS
@nigel7 Thank you for that info. I will definitely will look up CCUS and see how...
https://connect.mayoclinic.org/comment/1532835/
I will definitely will look up CCUS
Hi, I was diagnosed as slightly anemic about a year ago. I am 69 years old....
https://connect.mayoclinic.org/comment/918653/
My diagnosis is CCUS, Clonal Cytopenia ... Anyone else been diagnosed with CCUS
Thank you everyone. I have CCUS or MDS. I am not entirely sure, but we are...
https://connect.mayoclinic.org/comment/1086927/
I have CCUS or MDS. ... entirely sure, but we are leaning toward CCUS
Hi @j68eis, I see that @loribmt replied with helpful information about Clonal Cytopenia of Undetermined Significance...
https://connect.mayoclinic.org/comment/938924/
Cytopenia of Undetermined Significance (CCUS ... As Lori mentioned, CCUS is a condition
Ah, now I’m getting a clearer picture of what’s going on. You’ve been diagnosed with Clonal...
https://connect.mayoclinic.org/comment/970139/
Cytopenia of Undetermined Significance or CCUS ... injection)
When were you diagnosed with CCUS
I have received my NGS results. Official diagnosis is CCUS. My understanding is from an article...
https://connect.mayoclinic.org/comment/1005426/
Official diagnosis is
CCUS. ... CCUS may not even be the issue.
Hi @j68eis Receiving a diagnosis and not having anyone you know to compare experiences with can...
https://connect.mayoclinic.org/comment/937049/
forum who was also diagnosed with CCUS ... CCUS is a condition in which a person ... pamrod02 who also has the diagnosis of CCUS
I CCUS and I’m waiting to see how serious it is. While I wait, because of...
https://connect.mayoclinic.org/comment/973826/
I CCUS and I’m waiting to see how serious
@sonieaml I started this journey in 2017 (although, as I said, it was going on for...
https://connect.mayoclinic.org/comment/1473417/
I was classified as CCUS, and I have
@j68eis We’re not medical professionals on the site so really can’t comment on your lab values....
https://connect.mayoclinic.org/comment/934000/
And what is CCUS?
BTW, For the past several years I have used Google to search for CCUS information. It...
https://connect.mayoclinic.org/comment/1508967/
years I have used Google to search for CCUS
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