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Digestive Health

Welcome to a place where you can meet people living with digestive health concerns or caring for someone with digestive health concerns. Join the discussion! Ask your questions, share your story, or just say hello. Add yourself to the member list and click the + Follow button to receive [...]

DISCUSSION

Mesenteric Panniculitis or Sclerosing Mesenteritis

I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).

I

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Have you been tested for Alpha-1 Antitrypsin Deficiency disease? It's a rare inherited disease that affects the liver & lungs. I have Alpha-1 & I'm liver affected & my sibling is lung affected. Panniculitis is a subtype autoimmune disease of liver patients with affected Alpha-1. There is no cure for [...]

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Reply on Severe stomach pain problems

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Anybody on here know anything about Mesenteric Panniculitis! I just got a CT Scan diagnosis and not my Dr or anyone knows anything to tell me! Please help! [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Last Sunday I was diagnosed with Mesenteric Panniculitis and a supraumbilical midline hernia through CT scan! The ER doctor had to use Google to tell me what I had because nobody in the hospital has ever heard of it! So all I've been doing is reading up on it but [...]

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Reply on Sick daughter goes undiagnosed

My daughter did suffer from extreme constipation for years as well. A GI doctor tried to help her and the medications they prescribed did not work and she could not tolerate them. She went to a natural path who helped her with diet, colonics and supplements. Now that she is [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

My daughter has had similar GI problems for years. She is still undiagnosed. I started going on these groups to do research and get info. When she was a teen she had lymphatic malformations which they surgically removed. There was inflammation in mesentery at the time. So they found it, [...]

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Reply on Sick daughter goes undiagnosed

I am going to have her contact patient services to see if she can qualify for financial help. The information you just gave me is more than we have received anywhere in the past 10 years. Her symptoms sound exactly like mesenteric-panniculitis. It would be amazing if she could be [...]

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Reply on Sick daughter goes undiagnosed

DISCUSSION

No answers yet. Inflammed, bloated and abdominal pain

Hi Everyone,I am writing hoping initially share what has happened through my journey with this new diagnosis since March, 2019. It all started with a few months of bloating, abdomen pain, loss of appetite, and irregular bowel movements. Then in March, a few days of abdomen pain, and eventually, a

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Reply on No answers yet. Inflammed, bloated and abdominal pain

My symptoms seem to be improving a bit for now. But I must watch closely what I eat and how much I eat at one time. I do best by eating snacks several times a day rather meals. I am unsure what is from my hiatal hernia and what symptoms [...]

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Reply on No answers yet. Inflammed, bloated and abdominal pain

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Reply on No answers yet. Inflammed, bloated and abdominal pain

Hi@yrose-Welcome. I agree with everything said. I would like to add, reduce your stress (lack of information on this illness created a lot of anxiety for me, finding this group chat helped me kick start my healing process) I started to monitor all aspects of your life in hopes of [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

I had an adrenalectomy due to a benign growth september 2018, I presented with stabbing like pains in the front left flank, ct scan showed the tumour. I though aha! My pain has a reason. Off I trotted to get it removed, success. But,one year on, the pain is STILL [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Hi - I'm new to this. Was recently diagnosed with mesenteric Panniculitis. I'm just starting to look into things and thought Mayo Clinic would be a wonderful place to start. My symptoms started with having abdominal pain, upper center. Had an upper GI, no ulcers. Had a CT and [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

I’m new here. 38 year old male. I was experiencing flank pain and my urologist thought I might have kidney stones, so he ordered a CT. Came back with: There is very mild hazy fat infiltration at the root of the mesentery with associated scattered subcentimeter nodes; these findings reflect [...]

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Reply on 14 year old daughter and undiagnosed GI pain

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Most informative site: rarediseases.org/rare-diseases/mesenteric-panniculitis/ From my experience in relieving symptoms temporarily I used an elec heat pad on my abdomen. Cold pack also relieved symptoms but not as convenient as heat pad. [...]

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Reply on Mesenteric Panniculitis or Sclerosing Mesenteritis

Hi. I also was diagnosed with Mesenteric Panniculitis & feel & have many of the same symptoms you've described. As it's so rare many of us feel alone as you do. There is a wonderful & helpful Facebook page for those suffering from this. It's private to protect our medical [...]