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548 total results
Comment
@joshf52, here is an earlier discussion about WREN laboratories and testing for NETs. - NETest from...
WREN laboratories and testing for NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... oncologist who specializes in diagnosing NETs
Posted: Aug 4, 2024
Comment
Hello All: Antihistamines are also being recommended for a rather rare form of cancer that I...
rather rare form of cancer that I have, neuroendocrine ... tumors (NETs), sometimes referred to ... is very helpful and is part of the NETs ... most oncologists who treat folks with NETs
Support Group: Breast Cancer
Posted: Sep 1, 2020
Comment
Hello @tkredmon and welcome to Mayo Connect. We have a support group for patients and caregivers...
and caregivers who have Carcinoid/NETs ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... Will you post in the NETs support group
Support Group: Caregivers
Posted: Jul 17, 2024
Comment
I have been told by multiple oncologists that along with managing symptoms it also inhibits the...
I have no functioning tumors, so no ... significant role in the treatment of neuroendocrine ... tumors (NETs). ... primarily works to inhibit the growth of NETs
Discussion
Initial imaging and tests; what to expect after initial NETs diagnosis
polyp, biopsy - Well differentiated neuroendocrine ... tumor, WHO grade 1 (G1). ... Tumor is positive for synaptophysin. ... The tumor was so small, I don't ... My tumor was just so small... but I&
Last active: Jul 27, 2025
Discussion
New PNET Question Re: Surgery (I'm in bit of a pickle)
non-functional) pancreatic malignant neuroendocrine ... tumor (PNET) on my pancreas, measuring ... The tumor is located above the pancreatic ... oncologist I trust, but they’re not a NET ... have seen, and just connected with a NET
Last active: Aug 7, 2025
Discussion
How I was diagnosed with Parotid Gland Cancer (High-grade NETs)
with Parotid Gland Cancer (High-grade NETs ... was first diagnosed with High Grade Neuroendocrine ... It came back with a tumor on the parotid ... It was the "rare" cancer High grade Neuroendocrine ... The tumor was 2.5 centimeters.
Last active: Feb 16, 2021
Discussion
Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?
Small Bowel Neuroendocrine Cancer, Metastasis ... diagnosed in ‘21 (51 y/o) with SB net ... and metastatic tumor in the mesentery ... mesentery lit up on scan, primary tumor ... Are my hormones amiss from an unseen tumor
Last active: May 26, 2025
Discussion
Is MRI imaging on same machine for NETs + Liver metastases important?
Is MRI imaging on same machine for NETs ... across a study indicating that some tumors ... article/pii/S2211568417303200For viewing neuroendocrine ... metastatic liver tumors using a Siemens
Last active: May 20, 2025