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Discussion
Susac Syndrome . . . Anyone know anything about it?
Already dx with GCA, PMR, RA, PAN, widespread
Comment
After 3 years of prednisone, which worse than PMR, IMHO, I chose the grin&bear it path....
years of prednisone, which worse than PMR ... For me PMR has ups and downs, comes
Comment
Actemra doesn't work as quickly as prednisone works to relieve pain. Once Actemra starts to work,...
If PMR is the primary problem, Actemra ... similarly and is FDA approved for PMR ... https://www.kevzara.com/hcp/pmr? ... ;utm_campaign=G_24_KEVZARA_SEM_HCP_PMR_Branded_Condition_PMR_EX ... &utm_term=kevzara%20for%20pmr&
Comment
Until PMR was diagnosed, I had no problem tapering off prednisone … sometimes from 100 mg...
Until PMR was diagnosed, I had no problem ... PMR was a new beast. ... I wouldn’t say PMR was more painful. ... off prednisone for 12 years after PMR
Comment
@johnlo, I can understand your disappointment in not being able to get an appointment at Mayo...
I've moved your question about PMR ... markers to the Polymyalgia Rheumatica (PMR ... connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr ... Ongoing pain with normal CRP and ESR - PMR
Comment
I'm glad that CBD is working for you. I have considered trying it for my PMR...
I have considered trying it for my PMR