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Comment
@laree I would assume the maintenance shots are Octreotide or Lanreotide injections done on a monthly...
https://connect.mayoclinic.org/comment/1401182/
would assume the maintenance shots are Octreotide ... I’ve taken Octreotide for a year for
Discussion: Y90 AND Captem Combo
Support Group: Neuroendocrine Tumors (NETs)
Posted: Sep 25, 2025
Comment
@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...
https://connect.mayoclinic.org/comment/876306/
side effect of both Lanreotide and Octreotide ... had my first injection of 20 mg of Octreotide ... I did stay on the Octreotide for a couple ... you might talk to your doctor about Octreotide
Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group: Neuroendocrine Tumors (NETs)
Posted: Jun 10, 2023
Comment
@californiazebra I remember you from this time last year. I see the date on your post,...
https://connect.mayoclinic.org/comment/1540701/
remember people posting about DIPNECH or octreotide ... ultrasound) or anything BEFORE starting the octreotide
Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?
Support Group: Neuroendocrine Tumors (NETs)
Posted: Apr 1 7:58pm
Discussion
Tumor growth in three month follow up MRI
https://connect.mayoclinic.org/discussion/tumor-growth-in-three-month-follow-up-mri/
three months when I was not taking the octreotide ... tumors seem to grow once I started octreotide
Support Group: Neuroendocrine Tumors (NETs)
Last active: Apr 6, 2025