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1,328 total results

Comment

I left that forum because of conflicts. They weren't interested in Actemra and said it wasn't...

https://connect.mayoclinic.org/comment/1280137/

They weren't interested in Actemra ... quality of life" and waiting for PMR ... They said Actemra and a fast taper off ... waiting for PMR to burn out while I ... After Actemra controlled PMR, the only

Discussion: Exercise is so important

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2025

Comment

Why did your rheumatologist doubt if PMR was the correct diagnosis? PMR is a diagnosis of...

https://connect.mayoclinic.org/comment/1299586/

Why did your rheumatologist doubt if PMR ... PMR is a diagnosis of exclusion when ... my own doubts about my diagnosis of PMR ... My rheumatologist said PMR was " ... Now I'm on Actemra and PMR is still

Discussion: First meeting with Rheumatologist for PMR, need suggestions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2025

Comment

Actemra ... for PMR but it isn't FDA approved for PMR. Kevzara is FDA approved for...

https://connect.mayoclinic.org/comment/1142897/

Actemra ... for PMR but it isn't ... FDA approved for PMR. ... should work the same way as Actemra ... rheumatologis said after 12 years, Actemra ... I have been on Actemra for more than

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2024

Comment

My very first injection of Actemra was January 1st, 2019. I started with injections every 2...

https://connect.mayoclinic.org/comment/910262/

months to taper off prednisone with PMR ... reasonably well as far as symptoms of PMR ... happened after I was diagnosed with PMR ... Actemra for PMR. ... I choose Actemra for PMR When Actemra

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2023

Comment

I was diagnosed with PMR May 2016. I didn't want to use corticosteroids, so after I...

https://connect.mayoclinic.org/comment/763911/

I was diagnosed with PMR May 2016. ... did some research, I wanted to take Actemra ... a physician that'll prescribe Actemra ... PMR was gone before the (3) month period ... Actemra is expensive & insurance

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2022

Discussion

Damage to adrenals? Addison's Disease?

https://connect.mayoclinic.org/discussion/damage-to-adrenals-addisons-disease/

I've been treating PMR for 3+ years ... ;ve been on Methylprednisolone for PMR ... started tapering the steroid and began Actemra ... really hurting from that on top of the PMR ... Methylprednisolone to see if it was PMR

Support Group: Polymyalgia Rheumatica (PMR)

Last active: Aug 9, 2025

Discussion

New to this support group.

https://connect.mayoclinic.org/discussion/new-to-this-support-group/

Hi, I was diagnosed with PMR and GCA ... years to taper off prednisone and Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Last active: Jun 12, 2025

Discussion

Anyone had a similar experience?

https://connect.mayoclinic.org/discussion/anyone-had-a-similar-experience/

false starts I was diagnosed with PMR ... Gave Actemra a try but did not help. ... tells me he doesn’t believe I have PMR