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35 total results
Comment
Welcome to the CALR club. Me, too. Good news with CALR is that we don't have...
CALR patients also cannot progress to polycythemia ... vera. ... Glad that is not painful for you.
Posted: Jan 30, 2025
Comment
Hi @kimitammy, Welcome to Connect. It can sometimes be overwhelming dealing with the pain which makes...
sometimes be overwhelming dealing with the pain ... you were also diagnosed in June with polycythemia ... vera and the doctors may finally have
Support Group: Neuropathy
Posted: Dec 7, 2019
Comment
Think I posted this before but.. I was diagnosed with central pain disorder about six weeks...
I was diagnosed with central pain disorder ... I had no pain when I left Several ... developed severe burning tingling pain ... suggestion from my oncologist ( I have polycythemia ... vera, which I learned caused my stroke
Comment
@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...
Having pain in the big toe can be pretty ... what Mayo Clinic has to say about polycythemia ... vera: https://www.mayoclinic.org/diseases-conditions ... /polycythemia-vera/symptoms-causes/syc ... 20355850 You will see that indeed pain
Posted: Apr 10, 2023
Comment
Hi, Been a minute since ive been on here and realized I do need to get...
Diagnosed with Polycythemia vera in ... was apparently causing my fatigue, pain ... to not get answers for my secondary Polycythemia ... When you live with chronic pain, its
Support Group: Autoimmune Diseases
Posted: Oct 3, 2025