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39 total results
Comment
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis ... experienced specialists in the field of Amy/MM
Posted: Mar 12, 2023
Comment
Angiev18, Yes, I did have, and to some extent still do, have local docs who have...
Heart wall thicknesses up to 17-18 MM ... , well past the 12 mm standard. ... Hospital, Mayo, Boston Amyloidosis.
Support Group: Heart & Blood Health
Posted: May 31, 2020
Comment
CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...
;t exist yet for treating MGUS/SMM/MM ... background info and treatments for mostly MM ... The risk for progression of MGUS to MM ... decrease damage, including if someone has amyloidosis
Posted: Oct 27, 2024
Comment
@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...
14 have been dX with some form of Amyloidosis ... , including MM, LECT2, Gelsolin, Carnatine
Posted: Sep 18, 2018
Comment
@Predictable Sorry about that. I was trying to make the point that, with the stuff you...
over a thousand recognized forms of Amyloidosis ... MM, AL, hATTRwt, CGel, CCys, AH, AAlz ... , Lupus and more., all part of the Amyloidosis
Discussion: Stiff Heart
Support Group: Heart & Blood Health
Posted: Dec 20, 2017