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583 total results
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@dougrout I think the vascular surgeon is right. After starting Prednisone it is hard to interpret...
https://connect.mayoclinic.org/comment/1522364/
that it isn't a "targeted treatment ... your symptoms sounds consistent with GCA ... www.hopkinsvasculitis.org/vasculitis-treatments
Comment
Yes , 3 half months treatment with Pred & 12mths of treatment with Actemera for GCA...
Yes , 3 half months treatment with ... Pred & 12mths of treatment with ... Actemera for GCA & PMR
Now 5months ... since stopping pred ) I’m completely treatment
Comment
@inga71 I am always very careful when confronting doctors with "facts" I gather off the internet....
the doctor is placing on my personal treatment ... history when making future treatment ... ask to be tested for asymptomatic GCA ... continued "PMR" stubborn and treatment ... Off‑label
Tocilizumab, Refractory / GCA-PMR
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@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
6 weeks after I was diagnosed with GCA ... does Actemra help preserve vision in gca ... It's used when standard steroid treatment ... shown improvement, particularly if treatment ... at least some of their vision from GCA
Comment
I am very glad I found this support group. So helpful to not feel alone with...
my formal PMR diagnosis and formal treatment ... to 40mg in 4 days after a negative gca
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