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Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
mayocl.in/2cpKVI7
- Diagnosed with AL ... mayocl.in/2bQSFQR
- Cardiac autonomic neuropathy
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I've been on Gabapentin for years. Started at 100mg per day now I take 3200 mg...
headaches and twice as much pain from the neuropathy ... patients, epileptic, people with ME and ALS ... Pray that they find a good drug for neuropathy
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I was tested for ALS, MS, MG, etc. 8 years ago not because of my fasciculations,...
I was tested for ALS, MS, MG, etc. 8 ... I was afraid I had ALS. ... was all part of my HNPP (Hereditary Neuropathy ... I was relieved it wasn't ALS!
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I am no expert but it sounds similar to peripheral neuropathy……. Als twitches usually do not...
but it sounds similar to peripheral neuropathy ... Als twitches usually do not start randomly ... spasticity then twitch for it to be Als
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@faithwalker007 I'm not in your league when it comes to surgeries, but I've had my share,...
almost certainly related to autonomic neuropathy ... But because neuropathy isn't curable ... control and therapy for depression et al
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