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303 total results
Discussion
CIDP. HIZENTRA LONG TERM USE
CIDP. HIZENTRA LONG TERM USE ... have been on hizentra with biweekly treatments ... My doctor said it could a treatment ... Has anyone stopped treatment?
Support Group: Neuropathy
Last active: Apr 17, 2025
Discussion
Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions
then angiodema after the 6th month of treatment ... not happen until sometime after my treatment ... not occur until after after my last treatment ... occurred Two hours after the first treatment ... to work for my CIDP.
Support Group: Neuropathy
Last active: Apr 17, 2025
Discussion
Neuropathy that comes and goes
many, many tests he was told he had CIDP ... not walk at all after the first 5 treatments ... neurologist said he definitely did NOT have CIDP
Support Group: Neuropathy
Last active: Apr 13, 2025
Discussion
Just developed signs of IGA vasculitis ( Henoch Schonlein purpura).
will require more specialists and treatment ... Already on most of the treatment ( prednisone ... MTX, Rituxan, high BP meds) for RA, CIDP
Support Group: Autoimmune Diseases
Last active: Dec 3, 2024
Discussion
Recommendations for non diabetic PN Dr at Mayo Clinic
first neurologist diagnosed me with CIDP ... liver enzymes went up and I stopped treatment
Support Group: Neuropathy
Last active: Feb 21, 2024
Comment
I have tested positive for four years for the Epstein Barr virus. I am now being...
I am now being tested for CIDP. ... Treatment truthfully none. ... EMG/nerve conduction test for the CIDP ... inflammatory demylinating disease -CIDP
Support Group: Autoimmune Diseases
Posted: May 15, 2024
Comment
@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...
difficult to diagnose than others, CIDP ... been diagnosed and now you’re getting treatment ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
Support Group: Autoimmune Diseases
Posted: May 10, 2024
Comment
So I am newly diagnosed with CIDP (Mid March). I am going through IVIG. I'm struggling...
So I am newly diagnosed with CIDP (Mid ... I am responding to the treatment and ... I feel yucky after treatments, head
Comment
IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...
along with plasma exchange is the treatment ... for CIDP according to the medical journal ... (the doctors) want to test me for CIDP
Support Group: Neuropathy
Posted: May 1, 2024
Comment
Hello @blessed09, Welcome to Connect. You mentioned having the IVIG infusion treatments after being diagnosed with...
mentioned having the IVIG infusion treatments ... multiple-sclerosis-ms-please-introduce-yourself/ --- CIDP ... Did you find that the IVIG infusion treatments
Support Group: Neuropathy
Posted: May 1, 2024