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181 total results
Comment
@ling123 I have not been diagnosed with MAC, but probably should have. I have, however, been...
otherwise related to some form of Amyloidosis ... Gelsolin, Apolipoprotein, Cystatin-C, AL ... Martha Grogan's video on Diagnosing Amyloidosis
Support Group: MAC & Bronchiectasis
Posted: Aug 21, 2018
Comment
@pdsi43one @techi Hi, folks. I am not sure you don't know this, but much encephalopathy, rheumatoid,...
tissues, particularly Light Chain (AL ... paper at https://bit.Ly/1w7j4j8 under Amyloidosis
Support Group: Neuropathy
Posted: Feb 4, 2018
Comment
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis ... forms of Amy, incluging MGUS, MM, AL
Posted: Jan 16, 2018
Comment
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that ... All possible, and markers of AL Amy.
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
Comment
@brie87144 I have been thinking your issues a lot. After getting into the shower this morning...
trying the work through a diagnosis for amyloidosis ... (probably hATTR or AL of some form) ... me, some great help has come from Amyloidosis.org
Support Group: Autoimmune Diseases
Posted: Jul 28, 2017