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133 total results
Discussion
Our Dystonial DBS journey
Our Dystonial DBS journey ... journey Gary and (Kari with focal dystonia ... Kari was diagnosed in 2016 with Focal dystonia ... others about 15 pills daily Taking Botox ... I’ve had DBS are you still taking Botox
Support Group: Parkinson's Disease
Last active: Sep 16 8:41am
Discussion
Anyone with cervical dystonia and front and back neck fusions?
Anyone with cervical dystonia and front ... years for a diagnosis of Cervical Dystonia ... diagnosed since 2012 with Cervical Dystonia ... I have done Botox Injections in my neck ... from the neurologist to hold off on Botox
Support Group: Brain & Nervous System
Last active: Feb 1, 2025
Discussion
Cervical dystonia-PCP discontinued RX for Ativan for breakthrough pain
Cervical dystonia-PCP discontinued RX ... I have cervical Dystonia, an extremely ... The only treatment for it is Botox injections
Support Group: Brain & Nervous System
Last active: Apr 2 6:57am
Discussion
Ulnar neuropathy + focal dystonia — right hand periodic fingers cramp
Ulnar neuropathy + focal dystonia — ... 's working diagnosis is focal dystonia ... Botox to the forearm is a possible future ... anyone with an ulnar neuropathy / focal dystonia ... for you, and did you end up needing botox
Support Group: Neuropathy
Last active: Aug 24 2:13pm
Comment
@daisyswrm I’m so sorry to hear thar your wife is going through this. I also have...
I also have cervical dystonia and Parkinsonism ... Between Botox what has helped me is ... There is also the Dystonia Medical Research ... Foundation on facebook that has a cervical dystonia
Support Group: Visiting Mayo Clinic
Posted: Aug 16 7:20am
Comment
@fourleaf Have you tried what is called an ice sandwich? You place ice on your neck...
I have cervical dystonia, where my muscles ... Since 2001 I have needed to get Botox ... controls the migraines triggered by the dystonia
Discussion
Very bad neck pain, possibly misdiagnosed as cervical dystonia
possibly misdiagnosed as cervical dystonia ... Already had 50 units of botox type A
Support Group: Chronic Pain
Last active: Dec 31, 2025
Comment
Yes, Botox is a poison of sorts, however, when administered by a doctor for medical reasons,...
Yes, Botox is a poison of sorts, however ... reasons, it can help patients with dystonia ... case of Camptocormia which is axial dystonia ... , the Botox must be injected via focused ... are affected which causes the axial dystonia
Support Group: Spine Health
Posted: May 21, 2025
Comment
I had my first Botox injection in my foot for dystonia about 2 weeks ago.. I...
I had my first Botox injection in my ... foot for dystonia about 2 weeks ago ... I am planning on having the Botox repeated ... It is very beneficial for cervical dystonia ... The benefits for foot dystonia is less
Comment
Welcome, @simonetta. I'm glad to hear that you are finding some relief with the medical Botox...
finding some relief with the medical Botox ... further information about cervical dystonia ... you may wish to explore: - Cervical dystonia ... with others talking about cervical dystonia ... discussions: - Anyone else have cervical dystonia
Support Group: Spine Health
Posted: Jan 18, 2024