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Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis....
clinical trials for some types of amyloidosis ... trial at U Penn for Wild Type Cardiac Amyloidosis
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Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
Diagnosis
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Hi @rbnwalls2, have you been diagnosed with cardiac amyloidosis, also called “Stiff Heart Syndrome?”
have you been diagnosed with cardiac amyloidosis
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s Seek an opinion with a cardiologist who is knowledgeable and experienced about cardiac amyloidosis at...
knowledgeable and experienced about cardiac amyloidosis
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What do you mean Finnish Amyloidosis? I have Amyloidosis of Laryngeal and it spread to sinuses...
What do you mean Finnish Amyloidosis ... I have Amyloidosis of Laryngeal and