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Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...
did not cause long term breathing issues ... candidate for chemo due to pre-existing neuropathy ... in the lungs, but most start in the GI ... about your abdominal rash and stomach issues ... I think a higher percentage of GI NETs
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I had cramps in feet, calves, thighs, and even my torso...for years, starting in the 1990's....
;unremarkable" according to my GI ... lesions of unknown etiology and CNS issues ... several autoimmune and neurological issues ... grateful for the decreased cramps issues ... surprisingly effective, including with foot neuropathy
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