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111 total results
Comment
Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...
https://connect.mayoclinic.org/comment/1294207/
routine doctor appointment with fill in primary ... changed it one month later to probably myelofibrosis
Comment
Hi, I agree that the whole person approach is better. I finally have a decent primary...
I finally have a decent primary doctor ... saw the O/H and she feels I do have Myelofibrosis
Comment
I just returned from my first 6 month check up at Moffitt Cancer Center near where...
My diagnosis is Primary MF meaning I ... and a Facebook support group called Myelofibrosis
Comment
Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...
to maybe “might be transitioning to Primary ... Melofibrosis (PMF) which is treated
Comment
Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...
scarring of the bone marrow in MF or myelofibrosis ... MPNs or specifically Essential or Primary
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