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@mirakrye Sorry to hear your diagnosis- I was also diagnosed with Myelofibrosis in 2025 but primary....
https://connect.mayoclinic.org/comment/1479767/
diagnosis- I was also diagnosed with Myelofibrosis ... in 2025 but primary.
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Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...
I was diagnosed with primary Myleofibrosis
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Hi @samlupowitz , I had to look up what ECD is because I never heard of...
It seems like it is more rare than myelofibrosis ... I like my new insurance and primary
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@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....
One imbecile primary even laughed at ... to bloodwork from a yearly exam, my primary ... bone marrow biopsy, and there it was: Myelofibrosis
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Hi @gajokos , No worries. I think I had forgotten to read what you wrote in...
I have seen my new primary who is very ... sharing is how you were diagnosed with myelofibrosis ... knew CALR mutation could be ET or myelofibrosis
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