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I would consider getting repaired as soon as possible. I was at 4.5 when they repaired...
https://connect.mayoclinic.org/comment/175085/
when they repaired mine but I have Marfans ... syndrome.
Comment
You may want to look into and consider being evaluated for connective tissue disorder (Like Ehlers...
tissue disorder (Like Ehlers Danlos or Marfan's ... (I have Ehers Danlos Syndrome).
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Hello, I just wanted to say that I am having the exact same issue. I started...
heart murmur and am getting tested for Marfan ... 's syndrome.
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Hello to All! Nice to connect here with ones with similar diagnosis and see how we...
ve done 24 gene tests but no known Syndrome ... , ruled out Marfan's, etc.
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Really? I've never heard of anyone surviving aortic dissection. I know that it is often a...
that it is often a cause of death in Marfan's ... syndrome. ... aortic dissection -- they all had Marfan's ... syndrome.
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