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93 total results
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My 12 year old has marfans syndrome and suffers from leg length discrepency, loose joints,low muscle...
https://connect.mayoclinic.org/comment/88370/
My 12 year old has marfans syndrome ... would like to be in touch with other marfans ... patients or parents of marfans patients
Comment
I would consider getting repaired as soon as possible. I was at 4.5 when they repaired...
when they repaired mine but I have Marfans ... syndrome.
Comment
You may want to look into and consider being evaluated for connective tissue disorder (Like Ehlers...
tissue disorder (Like Ehlers Danlos or Marfan's ... (I have Ehers Danlos Syndrome).
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Hello, I just wanted to say that I am having the exact same issue. I started...
heart murmur and am getting tested for Marfan ... 's syndrome.
Comment
Hello. Mayo at Jacksonville, Florida has a clinic. A new EDS and Hypermobility Disorders Center recently...
If you contact The Marfan Foundation ... EDS is included in the Marfan Foundation ... list of connective tissue syndromes ... https://marfan.org. 516-883-8712.
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