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Hello. Marfan.org has been extremely useful in helping me with my hEDS problems. They are authorities...
Marfan.org has been extremely useful ... authorities in EDS, and other related syndromes ... , besides Marfans.
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I am 64 year male. From what I've read and my general cardiologist ( nor surgeon...
protocol for healthy candidates with Marfans ... Syndrome.
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Please contact The Marfan Foundation. marfan.org. They are the people to help you get to the...
Please contact The Marfan Foundation ... marfan.org. ... EDS is another syndrome that is included
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My aortic aneurysm is 4.3 steady last 2 6month scans. But it was 3.9 in 2018...
much info out there, but similar to Marfans ... , Loeys-Dietz syndrome which "is
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Be careful, you can have both. I did. Had a c6-c7 surgery and the Eagles got...
They can test by injecting marcane, ... If the marcane gives you improvement ... my throat and sometimes first bite syndrome