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Should a marfan syndrome and vascular Ehlers-Danlos Syndrome and has PVL and is highly fuctional CP....
https://connect.mayoclinic.org/comment/381516/
Should a marfan syndrome and vascular Ehlers-Danlos
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I just got diagnosed with a connective tissue disorder...told it was in the Ehlers Danlos family...
tissue disorder...told it was in the Ehlers
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Look into pots . Postural orthostatic tachycardia syndrome and ehlers danlos syndrome my daughter has them...
orthostatic tachycardia syndrome and ehlers
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Hi @tajahar, I can hear your concern for your daughter. This must be so hard to...
to this existing EDS discussion:
- Ehlers ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
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Hello @annettam, you may find the following information helpful, https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/care-at-mayo-clinic/mac-20362179.
www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome
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