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91 total results
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My son is 16 and their saying he has every sign of Marfans syndrome. His aortic...
https://connect.mayoclinic.org/comment/309709/
their saying he has every sign of Marfans ... syndrome.
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-I requested an appointment with Mayo Clinic and was declined. Apparently there are several collagen based...
Apparently there are several collagen based syndromes ... -including Marfans but few people specialize ... and specializes in collagen based syndromes-anyone
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My 12 year old has marfans syndrome and suffers from leg length discrepency, loose joints,low muscle...
My 12 year old has marfans syndrome ... would like to be in touch with other marfans ... patients or parents of marfans patients
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I would consider getting repaired as soon as possible. I was at 4.5 when they repaired...
when they repaired mine but I have Marfans ... syndrome.
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You may want to look into and consider being evaluated for connective tissue disorder (Like Ehlers...
tissue disorder (Like Ehlers Danlos or Marfan's ... (I have Ehers Danlos Syndrome).
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