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Hello to All! Nice to connect here with ones with similar diagnosis and see how we...
ve done 24 gene tests but no known Syndrome ... , ruled out Marfan's, etc.
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@lazyironman welcome to the group! I am not familiar with multiple bleb-induced phemothoraces, do you know...
do you know if they are common with Marfans ... , we were looking for Ehler-Danlos syndrome ... Did you them for Marfans? ... Fibromuscular Dysplasia, Ehlers Danlos Syndrome
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Really? I've never heard of anyone surviving aortic dissection. I know that it is often a...
that it is often a cause of death in Marfan's ... syndrome. ... aortic dissection -- they all had Marfan's ... syndrome.
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Hi, I was diagnosed in 2008 along with my son who was 22. We realized my...
He was referred to genetics where Marfan's ... criteria for all types of Ehlers Danlos Syndrome
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I was suspected of having Marfans syndrome. My doctor at the Mayo Clinic in Florida ordered...
I was suspected of having Marfans syndrome ... that covers just Ehler's-Danlos syndrome
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