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111 total results
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Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...
Like you, I was diagnosed with primary ... myelofibrosis but that was one month ... lowering all cell counts if I truly have myelofibrosis
Posted: Jun 30, 2025
Comment
I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...
I have Primary Myelofibrosis. ... were, “You are not going to die of Myelofibrosis ... You will eventually die WITH Myelofibrosis
Comment
Hi withhope, I am very sorry you have had such a bad experience with all that....
that, she changed my diagnosis to Myelofibrosis ... My risk analysis for Myelofibrosis done ... given the diagnosis of ET and then Primary ... Myelofibrosis, and CALR1 mutation.
Posted: May 16, 2025