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Hi @cheymallery and everyone. I survived 3 cardiac arrests when I had just turned 22. After...
https://connect.mayoclinic.org/comment/1399021/
ruling out other factors it turns out Long ... QT Syndrome is the culprit! ... Glad to find other Long QTers!
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Hi again Terri @windwalker Thanks for asking -- today I think the heart's okayish. But the...
But the long QT goes up and down and ... The meds still cause changes in QT and ... Yes the long QT over 500 ms is very
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Hi @penn1023, my daughter has Long QT and she also says Dr. Ackerman is the best...
Hi @penn1023, my daughter has Long QT
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Oh no, back on the NTM meds! I really hoped the Arikayce would clear you up...
Azithromycin have been known to cause Long ... QT, so it's a bit of a double-whammy ... s inevitable that I will get risky Long ... QT intervals again while on these 2
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Thanks for tagging me @lisalucier. Hi @cheymallery, I would like to add my welcome with Lisa's....
My daughter has Long QT syndrome also ... is that there are several types of Long ... QT and I'm not able to remember
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