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Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...
https://connect.mayoclinic.org/comment/963448/
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- Primary Myelofibrosis ... search=Primary+Myelofibrosis
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I, too, wanted a second opinion. I have Primary Myelofibrosis. My local clinic boasts as being...
I have Primary Myelofibrosis. ... were, “You are not going to die of Myelofibrosis ... You will eventually die WITH Myelofibrosis
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Have your doctors checked your platelets to see if they are low? This is from the...
This is from the Mayo Clinic:
"Myelofibrosis ... www.mayoclinic.org/diseases-conditions/myelofibrosis ... symptoms-causes/syc-20355057#:~:text=Myelofibrosis
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Hi @loribmt That was a very good video. I think doctors have a hard time telling...
Thrombocytosis (ET) and prefibrotic myelofibrosis
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I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...
biopsy revealed that I have primary myelofibrosis ... leading physician specializing in Myelofibrosis ... said that I probably won’t “die OF Myelofibrosis ... but WITH Myelofibrosis.
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