Genetic Heart Rhythm Diseases

Welcome to the Genetic Heart Rhythm Diseases page. The Mayo Clinic Windland Smith Rice Genetic Heart Rhythm Clinic, with the Windland Smith Rice Sudden Death Genomics Laboratory in Rochester, MN, is dedicated to diagnosing, treating, and researching all types of genetic heart rhythm diseases that can cause sudden death.

Follow the Genetic Heart Rhythm Diseases page and stay up-to-date as we post stories, clinical trials, and useful information regarding your genetic heart rhythm condition.

PUBLIC PAGE
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Our patient resources page is for patients and loved ones looking for more information related to genetic heart rhythm disorders. Helpful websites with more information on genetic heart rhythm disorders, information on safe medication use, as well as websites for patients to connect with each other are listed below.

Disorder-Specific Information

  • For up-to-date videos, check out and subscribe to Dr. Michael J Ackerman's YouTube Channel and/or follow Dr. Ackerman on Twitter (@MJAckermanMDPhD)
  • The Sudden Arrhythmia Death Syndromes (SADS) Foundation’s mission is to save lives and support the families and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities like long QT syndrome (LQTS), catecholaminergic polymorphic ventricular tachycardia (CPVT) and Brugada syndrome (BrS).
  • The Sudden Unexpected Death in Childhood (SUDC) Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC.
  • The Hypertrophic Cardiomyopathy Association (HCMA) is the preeminent organization improving the lives of those with hypertrophic cardiomyopathy (HCM), preventing untimely deaths and advancing global understanding.
  • GINAhelp.org is a great website to answer questions about how your genetic heart disorder may or may not affect health insurance and employment.

National Organizations

Medication Information

  • www.crediblemeds.org is a searchable resource on safe medication use for healthcare providers, research scientists and the public. They maintain the QT Drug list that have a risk of QT prolongation and cardiac arrhythmias under a contract with the FDA’s Safe Use Initiative.
  • www.brugadadrugs.org is used as an aid to physicians who treat patients with Brugada syndrome and as an aid to patients with Brugada syndrome and their families with the goal to provide free, worldwide accessible and up-to-date information on safe drug use in Brugada syndrome.

General Genetic and Rare Conditions Information

Connecting with Others

  • Camp Odayin provides fun, safe and supportive camp experiences and community building opportunities for young people with heart disease and their families.
  • Camp del Corazon Camp del Corazon is a nonprofit organization that provides year-round experiential opportunities for children faced with the challenges of growing up and living with heart disease.
  • Make-A-Wish is a nonprofit that serves a unique, and vital, role in helping strengthen and empower children battling critical illnesses by granting wishes that change the lives of the kids they serve.

Current Guidelines  and Scientific Statements

Guidelines and scientific statements are used by doctors to know the best way to diagnose, treat and prevent diseases and conditions. A rigorous and thorough process is used to develop these recommendations and they are based on the strongest available scientific evidence. Guidelines are available for a very diverse variety of diseases and conditions. For more information, visit this article written and published by American Heart Association. Below are the most current guidelines related to GHDs used in the Genetic Heart Rhythm Clinic.

Guidelines:

*Co-authored by Dr. Michael J. Ackerman; Article referenced in charts on Disease Overview page

Scientific Statements:

**Article referenced in charts on Disease Overview page

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