With heart failure, be in control of your medications

Feb 11, 2022 | Marie Suszynski, Writer | @mariemayohecs | Comments (8)

 

 

When you have heart disease or damage — such as from a heart attack — your heart doesn't work as well or as efficiently over time. When this happens, heart muscle can gradually stretch and weaken, or heart tissues can become stiffer. The result is called heart failure, meaning your heart no longer has the ability to pump blood well enough to meet all of your body's needs. Heart failure is a  serious disease with no cure, potentially causing uncomfortable symptoms or even death.

When you have heart failure, you'll need to take medications, most likely every day for the rest of your life. Work with your doctor and pharmacist on a system that ensures you're consistently taking the right drugs and the right dose at the right times. One study of older adults with heart failure found a massive gap between their perceived ability to stick to medication schedules and their actual ability to do so. The consequences can be severe.

To ensure you're on the right track, follow these guidelines:

  • Plan ahead so you don't run out — Find out from your insurance company or medical provider how far in advance you can refill your prescriptions. Many companies will let you refill at least one week before you run out. Others may let you refill sooner.
  • Always check for accuracy — Either at the pharmacy counter or your kitchen counter, make sure that you're given the correct medications, at the correct doses. If something looks awry, talk to a pharmacist right away.
  • Understand "target dose" — This refers to the dose of a drug that had the greatest benefit in clinical trials. However, you probably will not start out at the target dose right away. You may need to gradually build up to the dose, which sometimes takes weeks or months.
  • Store drugs properly — If your drugs are in pill form, keep them in a closed container at room temperature, away from heat and direct light and out of the reach of pets and children. Don't store medications in the bathroom or in humid areas. Ask your pharmacist about safe storage of liquid medications. Some should be refrigerated, while others can be kept at room temperature.
  • Set a routine — Keep a list of all the drugs you take, including how much and how often you need each. Update it as your prescriptions change. Try to take the same drugs at the same time daily, such as just after breakfast or before you brush your teeth. Use a pillbox, with the right medications in each day's slot. Set reminders — an alarm on your smartphone or an alert on your calendar works well, as do "visual reminders," such as sticky notes on your bedroom mirror or a red ribbon tied to your purse or refrigerator door handle.

 

For more discussions like this one, check out the Heart & Blood Health group.

 

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I would like to see a Heart Failure Support Group--Is that possible?

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@janalynnnor

I would like to see a Heart Failure Support Group--Is that possible?

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Welcome @janalynnnor, There is a discussion started by @colleenyoung that may be something like you are looking for.

Women and Heart Health: Have you got a story to share?: https://connect.mayoclinic.org/discussion/women-and-heart-health-have-you-got-a-story-to-share/

Are you looking for a local heart support group or one with online meetings or discussions?

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Thanks, I will check it out! I want Mayo Clinic to sponsor one!

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@janalynnnor

I would like to see a Heart Failure Support Group--Is that possible?

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I care take of a heart failure patient. He would luv a support group for this.
I have used the TKR group since my first TKR July 2021 luv it.

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I would also like to see a support group for people living with heart issues

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It could be a virtual event.

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I think you may be requesting a monthly Zoom-type support group similar to the cancer, transplant and other Mayo-led groups listed in the calendar. Currently, there isn't a monthly group dedicated to heart failure. See all support groups at Mayo Clinic listed here: https://www.mayoclinic.org/patient-visitor-guide/support-groups/finding-support-group

@janalynnnor @retirement75 @suziet, I encourage you all to take part in the Heart & Blood Health support group here on Mayo Clinic Connect:
- Heart & Blood Health https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Like the Joint Replacements group, the Heart Health group is an informed and supportive group of members who post questions, offer shared experiences, and give and get support.

I invite you to start a new discussion in the Heart Health group. Let's get this started.

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I have AFIB and had an Ablation in 11/2020 at Mayo Clinic it worked until this year. So I was put all the medications, which again did not work so had an CardioVersion almost 4 months ago at Mayo Clinic. It continues to work today, but I have learned a great deal about monitoring your body and how your body is dealing with the prescibed medications. I started monitoring my blood pressure, heart beat and checking on Kardia my heart rhythm. I found my blood pressure was getting lower as was my heart beat and contacted my Doctor in the Chart Portal but found the response to my concern needed prompt attention and went to Mayo ER..After 3 hours of testing it was concluded one of my Medications was causing my low blood pressure and I was basically Over Medicated….My Doctor ended up taking me off of it. So my monitoring of my Heart and how it was effecting by body is something I need to do daily for my Health.

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