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Posts (4)

Apr 30, 2017 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Hi! I had my myectomy this past December and today is my 4 month anniversary! The recovery isn’t as bad as I thought it would be. But, don’t get me wrong and think it’s easy either. I became anemic from blood loss in surgery so I was probably weaker than most (I was warned that I would). I had pain, but it was well managed by taking Tylenol throughout the day. My biggest problem was not doing anything around the house and resting. My best advice is to be as healthy as you can going into surgery. Best of luck to you.

Oct 27, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi Colleen. I believe communication between local and distant HCM could be improved, including with myself. I do keep a binder of my tests and procedures.

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

And I still live some distance from my local HCM cardiologist as well. About 2 hours away. I did find a cardiologist in my town who is familiar with the disease and is open to working with my HCM doctor. He is the doctor I will see if something urgent comes up. I find all this to be so complex sometimes, but really lucky to have access to good care.

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, I’m Tillie from California. Thank you for adding me. I found out in 2011 that my brother had HOCM. I was asymptomatic at that time and was told by a local cardiologist that I didn’t have it and never would. I then became symptomatic two years ago and was lucky to find a knowledgeable HCM cardiologist. In June of this year, my cardiologist recommended that it was time for a myectomy. I am scheduled to have one on December 30 at the Rochester’s Mayo.