My brother was diagnosed with Dermatomyositis/Polymyositis at age 22 going to every type of doctor and finally an Allergist came up the diagnosis. After the initial diagnosis by the allergist, he spent a period of time at Mayo Clinic in Minnestoa and I am convinced that the time there enabled them to set the course for his future. He is now 61 and has had many meds/treatments etc. Unfortunately this disease is not curable but the fact that he is still with us is a testament to his doctors and his treatment. All 4 of his extremities have been affected by this disease. He also has respiratory problems, cardiac problems, e.g. AFib. (he recently had an ablation). Has GI problems due primarily to all the meds he has taken but this is fairly well under control with diet changes. He is still on many meds and has a team of doctors caring for him. My point in telling this story is that although this disease is very debilitating, one can live a fairly long life and be productive. He is a husband, a grandfather to 3 children and my cherished brother. To this of you who are going through these issues now, take heart and keep a positive attititude!! With the right physicians and treatment, hopefully you can have a decent future.