About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (9)

May 1, 2017 · prostate cancer treatment choices in Prostate Cancer

This is Dglass reporting from Fla mayo country
I had proton beam therapy in Jax after I had a liver transplant . Liver transplant 2011 , proton beam summer
2013 . Subsequently my PSA shot up January 2016
Then I had cryo surgery in summer of 2016 a salvage
Job at mayo Rochester ……. subsequently my PSA
Went down and now has gone back up to 6.8 although
Down from 7.7 in February of 2017 .
My opinion is that radiation / radical surgery / hormone
Therapy …… all leaves you with a ratio of 75 to 98%
Of no cancer … but… it still leaves a very large percentage of us with additional surgery ,radiation,chemo
Or hormone therapy !!!! Best of luck keep plugging away at it

Aug 17, 2016 · Living Life after your Transplant in Transplants

@dglass4040
My transplant was due to AAT….. Alpha one anti trypsin disease . Inherited from my parents. This disease was isolated by the swedes in the 1960’s because young adults were contraction emphsema .
My mother was half Swedish and my father was half scotch ……. Orphan disease approx 100,000 people effected yearly ….. Primary symptoms do not really start until late twenties early thirties. You either need a lung or liver or both transplants …. Some need pancreas operations.
So, my sister was diagnosed at 38 and since died this past year at 67 and my brother 58 is about to have a liver transplant at UVAMED.
In October of 2010 I finished a Skyscraper in Nyc for the Rolex Watch company. Within 30 days of completion of this project my liver started failing . I had been followed
By the liver department of YALE Center of Digestive Diseases for 10 years and they were confident I would live a long life before I needed a transplant. By May of 2011 I had 14 ascities taps and had lost 60 lbs.
My visit to mayo Florida was suggested by my brother and my YALE ….Dr. Tamar Taddei.
By August 4 my Meld score had soared to 26 and I proceeded with a liver transplant by Surgeon Dana Perry.
Post transplant was very tough for a few weeks.

Later determined that I did not have a rejection but
My main hepatic artery was fully occluded or blocked
In the first 90 days …. My new liver formed new
Vessels or extensions to feed the liver and today I am rated low to failure . But, so far so good .
Life has been challenging…. In 2013 I had prostate cancer
With proton beam therapy, and now I am going to
Mayo Rochester for a 2nd prostate cancer operation.

Hand cleaning and staying away from crowds has
Giving me a cold free life for five years.
Washing food and making most of our meals has
Saved me from any food poisoning. Shaking hands
Is followed by quick hand cleaner. Movies are watched
At midweek at 1:00 pm matinees

Staying away from school kids , and a distance from all
3rd world travelers ( my nephews)

I am very happy to be alive and enjoy every day
Stress is to be forgotten.
Best to all
DGlass4040

Jul 17, 2016 · I'm 64 could I be a good candidate as a live donor? in Transplants

Dear Crew ,
Good note ,,,, good luck
Keep up the hard work and get yourself listed at mutilple liver transplant centers …!!!!
Go to Florida Mayo in Jacksonville……
The are very good
DG 5 years and counting

Jul 15, 2016 · Anyone have breathlessness with changes in antirejection meds? in Transplants

Have you had a stress test or a NUC scan or a Heart Cat
Time to find a new cardio doc
You should not be breathless ….. That is not right
Maybe pulmonary hypertension

Jul 15, 2016 · Anyone have breathlessness with changes in antirejection meds? in Transplants

Not that I know of …..
I do all my work at both mayos
Minn & Florida

Jul 15, 2016 · Anyone have breathlessness with changes in antirejection meds? in Transplants

Rosemarya…. Did the cardio do multiple
Lipids & chlorestol , trygliercides (sp)
Tests ……

Jul 15, 2016 · Anyone have breathlessness with changes in antirejection meds? in Transplants

John, ALL immunosuppressants cause the liver to increase cholesterol(s) & lipids …… Which causes your heart to be blocked …… Believe me I have this issue after 4 years ….
Prior to transplant my numbers were very low

Jul 14, 2016 · I'm 64 could I be a good candidate as a live donor? in Transplants

I had a liver transplant five years ago… And I initially started my review at Yale transplant center… I had a wonderful pathologist Hepatologist who strongly suggested to me to go south… Meaning southern United States because that is the only place where there is many young people that can become donors for your son . By donors I mean people that unfortunately die or have accidents.

Giving part of your liver to your son is a wonderful idea but you must realize that the operation on you will be just as intense as the operation on your son.

I would suggest that you travel to Florida Mayo Clinic it does the largest amount of liver transplants in the United States. Five years ago it was strongly suggested that having donor livers was a great option… I believe even at Mayo this is become an option of last resort.
Good luck my prayers are with you!
Dik Glass