My transplant was due to AAT….. Alpha one anti trypsin disease . Inherited from my parents. This disease was isolated by the swedes in the 1960’s because young adults were contraction emphsema .
My mother was half Swedish and my father was half scotch ……. Orphan disease approx 100,000 people effected yearly ….. Primary symptoms do not really start until late twenties early thirties. You either need a lung or liver or both transplants …. Some need pancreas operations.
So, my sister was diagnosed at 38 and since died this past year at 67 and my brother 58 is about to have a liver transplant at UVAMED.
In October of 2010 I finished a Skyscraper in Nyc for the Rolex Watch company. Within 30 days of completion of this project my liver started failing . I had been followed
By the liver department of YALE Center of Digestive Diseases for 10 years and they were confident I would live a long life before I needed a transplant. By May of 2011 I had 14 ascities taps and had lost 60 lbs.
My visit to mayo Florida was suggested by my brother and my YALE ….Dr. Tamar Taddei.
By August 4 my Meld score had soared to 26 and I proceeded with a liver transplant by Surgeon Dana Perry.
Post transplant was very tough for a few weeks.
Later determined that I did not have a rejection but
My main hepatic artery was fully occluded or blocked
In the first 90 days …. My new liver formed new
Vessels or extensions to feed the liver and today I am rated low to failure . But, so far so good .
Life has been challenging…. In 2013 I had prostate cancer
With proton beam therapy, and now I am going to
Mayo Rochester for a 2nd prostate cancer operation.
Hand cleaning and staying away from crowds has
Giving me a cold free life for five years.
Washing food and making most of our meals has
Saved me from any food poisoning. Shaking hands
Is followed by quick hand cleaner. Movies are watched
At midweek at 1:00 pm matinees
Staying away from school kids , and a distance from all
3rd world travelers ( my nephews)
I am very happy to be alive and enjoy every day
Stress is to be forgotten.
Best to all