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Posts (17)

Jan 18, 2018 · Keytruda in Head & Neck Cancer

My husband, Ken, was on Keytruda for one year. Scan results were very good until the last two months. Two tumors began to grow rather than shrink. However, the 50+ smaller ones under his arm are now gone. We are thrilled to be dealing with only two tumors now. At this point, radiology is an option. We consult with a radiologist tomorrow. The Keytruda side effects were minimal. He had two squamous cells cancers on his leg that needed MOHS surgery. He also had some rashes that were managed with various creams and ointments.

Jun 19, 2017 · Immunotherapy in Cancer

Ken has completed 11 infusion of Keytruda. He has experienced some side effects. His cortisol level plummeted, so he is on 30 mg of hydrocortisone for the rest of his life. Also he has a rash that has been problematic. One area turned into a squamous cell cancer, so he had to have Mohs surgery on his left ankle. We had a 9 week interruption in treatment with cortisol problems, but the squamous cell problem has not stopped therapy. His last scan showed mixed results: tumors on the left side grew while the ones on the right shrank. Despite these issues, we are now measuring tumors in mm rather than cm. And the really good news is that he remained stable during our 9 weeks off therapy. We feel blessed to have this option. I pray you have a good response.

Jun 1, 2017 · Head and neck cancer in Head & Neck Cancer

Joe, Ken completed his 11th immune therapy treatment today with Keytruda. His recent scan showed mixed results, but the tumors are measuring in millimeters rather than centimeters now, so we are thrilled. We hope to complete 17 infusions before a break.
I am interested to hear of your progress with androgen deprivation therapy.

Mar 11, 2017 · Diagnosis and discussions: HPV 16 Squamous Cell Carcinoma in Head & Neck Cancer

I set up a binder for my husband who has salivary duct carcinoma. These are the categories that I have found helpful: medication list, tests results, Primary physician, radiologist, surgeon, oncologist, treatment, research, appointments, insurance. I keep several sheets of lined paper in each doctor tab to record notes. Unfortunately, Ken was stage 4 when diagnosed, so surgery and radiation have not been an option. He is currently taking immune therapy.. Keytruda. The therapy has damaged his endocrine system, so we will be off for 9 weeks while taking steroids. The good news is the tumors do not appear to be growing. We are scheduled for a scan in 2 weeks and will resume therapy in 3 weeks. Being organized is key to being able to support your husband. This is one area that I can control.

Dec 21, 2016 · Head and neck cancer in Head & Neck Cancer

Immune therapy is a targeted cancer therapy. Through a complicated process, the T-cells are activated to attack the cancer cells. The drug uses your own immune system to fight the cancer.

Dec 21, 2016 · Head and neck cancer in Head & Neck Cancer

My husband has stage 4 cancer with no cure available.  The immune therapy, Keytruda.(.Pembrolizumab) has FDA approval for head and neck cancers.  Ken has a 30 minute infusion once every 3 weeks.  We just had his first scan between the 3 rd and 4th infusion.  We had significant shrinking of most tumors.  The only negative side effect has been a rash which is easily handled with medicated lotion.  It is my understanding that this expensive therapy is a second-line treatment.  Medicare approved it, so we are thrilled!  We wish you luck as you seek help.Sylvia 

Dec 21, 2016 · Head and neck cancer in Head & Neck Cancer

We receive excellent care from Vanderbilt in Nashville, TN.  My husband has salivary duct cancer…very rare.  He received a good response from chemotherapy.  We are on the second line of treatment with immune therapy.  After 4 treatments, his scans showed good shrinkage.  Clinical trials are available.  Good  luck to you.Sylvia Faries

Nov 29, 2016 · Head and neck cancer in Head & Neck Cancer

He has now finished 3 infusions. We really feel blessed this therapy was approved for head and neck cancer. I made a big decision for my own health. I have been suffering with an arthritic big toe joint for the past few months. The only cure is to fuse the joint. I had this procedure done on my right big toe in 2013, so I am well acquainted with the process. With an uncertain future, we decided I should have the fusion surgery for the left toe now. I need to be in good shape to take care of Ken. I am two weeks post-op now and healing well….so glad I have only two feet! Family and friends are such a blessing to help!