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Oct 6, 2016 · Multiple family members with autoimmune diseases....is there a link? in Autoimmune Diseases

Thank you for responding. Yes it is very interesting and getting genetic testing not a bad idea but I am sure must be pricey.

Aug 18, 2016 · Multiple family members with autoimmune diseases....is there a link? in Autoimmune Diseases

Thank you so much for response. I will continue to look at responses and push forward I research so to grasp greater understanding.

Aug 4, 2016 · Migraines in Chronic Pain

Hello,
Please excuse me if this was already asked but have you tried the zecuity patch? Helped my daughters migraines…. Almost instantly

Jul 14, 2016 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

Was dx in October 2015 mild to mod atrophic changes in medial temporal lobe on right . Also mild cerebral atrophy….. I am nurse and was able to sit down and engage with my neurologist of my MRI Changes from MRI 3/14 2015 and one done on 10/2015. A pet scan ordered showed no early onset dementia or Alzheimer’s but no suggestions of why I have the atrophy. I also have an extensive family history autoimmune disease in immediate family which include MS, RA AS, psoriatic Arthritis and Lupus
I had received Dx of HLAB-27 and Lupus after labs by my family doctor. I had asked to be tested because 2 of my children were HLAB-27 +. And father and Paternal grandmother had Lupus. When I followed up with a Rheumatologist he said tests were inconclusive. The only other hx Is I had asthma as a child and in 2013 had had 5 hospitalizations for pneumonia ….I had a lung biopsy which differential dx was BOOP …… I was treated high dose steroids for 4 months …..I have some fibrosis……and take COZpd medication …… Maybe steroids caused changes in my brain? Maybe auto immune related ….. Back to neurologist in 3 weeks Reumatologist next week….. It affects my life in that I repeat things sometimes 3/4 times a day …. Hard to remember what i did yesterday or if I talked to someone ….. I have anxiety and I am unorganized and get overwhelmed easily ….. I used to be the best at multitasking . As a single mama of 4 for 16 yrs, I had practice.
Not sure if anything I just said helps….. I will report anything new I hear but as of now …… I too am still seeking answers.
Please keep updated and any new info I hear while I am researching, I will be sure to let you know.
I also will be praying for answers . God Bless you and give you favor and discernment.
Sincerely, Denise

Jul 13, 2016 · Multiple family members with autoimmune diseases....is there a link? in Autoimmune Diseases

Thank you, Alyse. My name is Denise btw.
I work as RN case manager but have not yet come across many families with the extensive family autoimmune history as mine.
I appreciate any feedback I can get.

Jul 13, 2016 · Multiple family members with autoimmune diseases....is there a link? in Autoimmune Diseases

Yes, I am an RN and have known I had some auto immune symptoms and my Rheumatologist 3 yrs ago said inconclusive back then. The last 1 1/2 yrs had short term memory loss and had MRI confirm brain atrophy and right frontal lobe atrophy….neurologist had no explanation. I did research and saw correlation between brain atrophy and Lupus. I guess tomorrow will have labs back. Should shed light on some things. This is the worst I have ever felt.
Thank you for your feedback and e info …. I will check out clinical trials. God bless you!

Jul 13, 2016 · Multiple family members with autoimmune diseases....is there a link? in Autoimmune Diseases

i am 48 yr old who tested + for HLAB-27 and Lupus at my family physician in 2012 after my son 2011(18 yr now) dx AS and daughter (23) dx same ur psoriatic arthritis. My father 70 just passed awayJune dx Lupus, end stage lung disease, brother(50 ) with primary progressive MS and his Daughter (23) dx RA . Anyone see this many autoimmune in 1 family? Know any clinical trials?
I read correlation between lupus /MS and AS/ MS. Anyone else know any info would be helpful.