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Posts (8)

Oct 6, 2016 · Epilepsy - experiencing different types of seizures in Epilepsy & Seizures

As a caregiver I am trying to learn as much as possible about the different seizures. It is helpful because my husband has had 1 seizure in 12/2013 and we think the recent ones have been nocturnal. I like his neurologist but I also would like a second opinion. The diagnosis came after doing eeg & sleep deprivation eeg of right temporal lobe epilepsy. The vimpat at 100mg morning and night seems to be working at the moment. But I also work at a nursing home/ skilled facility and find this helpful for some of the resident in recognizing seizures in patients

Oct 6, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

In 2008 when My husband and I called Mayo to get help for my husband. Not with chronic pain but other medical issues, they told us if you have your primary doctor send a referral they will probably get you in quicker or nuerologist

Sep 15, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

He was on levetracitram 500mg time release. The doctor wanted him to take 1000mg but he could not handle it, the mood extremes etc. The last visit she started him on vimpat and was weening him off the levetracitram. We finally just decided that both meds still was causing difficulty. So far with vimpat 100mg morning and night has been working okay so far.

Aug 13, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

I am considering second opinion. Waiting to see what else is suggested for now because he has a few more weeks of work still. The summer is his busy time. He is a HVAC Tech and they are busy. Anyway he is in blood clots study from 2008 trip to Mayo and have considered asking to be sent the for study on epilepsy.

Aug 11, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

We believe he may have been have nocturnal seizures and last month from his description of an incident at a supply house he may have had a simple partial seizure. He is diagnosed as having right temporal lobe epilepsy. he has done the home eeg/ video monitoring after the initial eeg, sleep deprivation eeg and tilt table test. This was done 2014 after the initial seizure Dec 19 2013. He can not tolerate the recommended dose of keppra er 1000 mg. He was only taking 500 mg keppra er for the last two years. Was hoping vimpat would work but he has complained of the side effect, he has never looked up the side effect but I have. She wants him to take vimpat 200mg in morning and night but so far at 100mg morning and night with keppra 250mg at night the side effects are effecting him. What other studies can there be? I have looked up information on temporal lobe epilepsy and recently contacted epilepsy foundation in St. louis, Mo trying to get more information. They recommended adkins diet. We eat low fat diet and he is eating fruits and veggies, also exercises frequently. Our meat is locally grown and butchered very lean meat. It is crazy we were at Mayo in Rochester in Dec 2008 for other medical problems he had after pulmonary embolisms in Dec 2007.

Aug 10, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

We went to our follow up with our epilepsy Dr. and she is trying to wean him off of levetracitam/ keppra and replace it with vimpat. So far he has experienced the common side effects. He has done the 72 hour EEG/VIDEO at home, EEGS and sleep deprivation EEG. She mention sending him to a university for a study to see if they could trigger a seizure or something to identify what is going on. Anybody have any ideals. He is taking vimpat 100 mg am/pm and 250 mg of levitracitam pm.

Jul 12, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

He keeps with his routine appointments with both PCP & Neurologist, has appointment 21st this month. I called the neurologist to report the recent events. His PCP does regular annual blood work. Always has been good. Diet generally low fat other than he likes his chocolate and he exercises. We had spent 11 days in Rochester in dec 2008 because of issues he was having but the doctor there said there is not enough scientific proof that electrocution 277 volts could have caused the blot clots, even though there was no exit wounds. Personally I think it has messed up his body’s electrical currants. Going from perfectly healthy 43 year old to having blood clots, palpitations & seizures. He does stress easily and that is part of the trigger on his seizures I think. Congratulations on controlling your seizures and migraines. Thank you for your help.

Jul 12, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

I am looking for more information about right temporal lobe epilepsy. In December of 2013 my husband had a seizure but was not diagnosed with epilepsy until March after they done a sleep deprivation eeg. There is no family history of seizures and no prior injuries, but in Oct 2007 he was electrocuted with no injury visiable. In 12/30/07 he had blood clots causing bilateral PE. Again no family history or injury. Although there is no medical/scientific proof that the electrocution could cause the things. I believe it is possible. Our issue now is trying to determine if he is having nocturnal seizure. He wakes up occasionally in the morning he doesn’t feel well, fatigued, disoriented, etc. this seems to be happening more frequently. Within the past few days he has told me the night before he had tingling in his head on right side, wasn’t feelin well before bed. He got up the next morning was disoriented, fatigued, nauseous,, strange smells/ taste and bad headache. Yesterday he at supply house to get parts for his job got out of his vehicle and was shaking unable to control it but not as in typical gran mal or petite mal. It lasted a minute. He is taking levitracitram/ keppra but he only will take half the recommended dose due to side effects, doctor hesitant to change due to warfarin. Even though I have researched online I feel like I need more information to help him. Also seems to be getting noise sensitive, tells me I am talking loud.