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Posts (11)

6 days ago · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I went to my doctor that I seen in the past for a new patient visit last week showed him my mother's health history. He ordered the echo based on heart murmur and leaky valve he possibly heard. I did my annual visit may 28 with old clinic and nurse practitioner never mentioned hearing the 2 years i seen them. They also see my mom for her health issue and knew the cardiologist recommended her children get checked. It seems ridiculous insurance wants you to have a symptom before you can be checked.

Mon, Jul 8 1:20pm · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, my mother was told in 2013 that her heart condition is hereditary. Hypertrophic cardiomyopathy, I had mentioned it in the past to primary physician but I had no symptoms. But I now am going for echo next Monday. I am healthy but over weight, actively working at nursing home as Restorative Aide and CNA. Until reading today I really didn't understand the diagnosis as I care for my mother's health issues. Never looked up the diagnosis in detail of was explained. She is 79 years old. Her symptoms have been treated as they came but no one said it was hereditary until 2013. Took her to hospital for bronchitis, where when they were treating her for the bronchitis she had trouble and then is when she started with Afib, animation and dual chamber pacemaker. I am just wanting to prevent issues while I can by getting checked for HCM. I have to admit after reading it makes me nervous but the only things that seems to effect me to much caffeine and cough/ allergy medicines.

Mon, Jan 21 9:21am · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

We were at the Rochecter, Minnesota. It was very thorough. My husband was electrocuted with on visible injuries but 4 months after he had a blood clot pass through his heart into his lungs. For a year almost he had health issues that the neurologist would tell him it was anxiety. Finally in Dec 2008 we went to Mayo. They set you up with appointments concerning your health issues, go over your previous test and procedures performed and results. We had approximately 8hrs of Monday to Friday appointments for 11 days. Although he was told that no medical electrocution would not cause this to happen, we found answers for other issues. He still has issues i believe is caused from the electrocution because it seems like temporal lobe epilepsy, blood pressure issues, and heart rate all seem to be the effect of the bodies electrical currants. He had issues to where after cardio exercise blood pressure and his heart rate gets power then normal. He to a break from his workout because he messed his knee up from over stretch. He would work our for two hours. Now starting back to exercise and diet his blood pressure is dropping again to the point of almost passing out but heart rate stays 54-74 with pressures low. Any back to our visit at Mayo i do feel it was definitely worth going.

Oct 6, 2016 · Epilepsy - experiencing different types of seizures in Epilepsy & Seizures

As a caregiver I am trying to learn as much as possible about the different seizures. It is helpful because my husband has had 1 seizure in 12/2013 and we think the recent ones have been nocturnal. I like his neurologist but I also would like a second opinion. The diagnosis came after doing eeg & sleep deprivation eeg of right temporal lobe epilepsy. The vimpat at 100mg morning and night seems to be working at the moment. But I also work at a nursing home/ skilled facility and find this helpful for some of the resident in recognizing seizures in patients

Oct 6, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

In 2008 when My husband and I called Mayo to get help for my husband. Not with chronic pain but other medical issues, they told us if you have your primary doctor send a referral they will probably get you in quicker or nuerologist

Sep 15, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

He was on levetracitram 500mg time release. The doctor wanted him to take 1000mg but he could not handle it, the mood extremes etc. The last visit she started him on vimpat and was weening him off the levetracitram. We finally just decided that both meds still was causing difficulty. So far with vimpat 100mg morning and night has been working okay so far.

Aug 13, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

I am considering second opinion. Waiting to see what else is suggested for now because he has a few more weeks of work still. The summer is his busy time. He is a HVAC Tech and they are busy. Anyway he is in blood clots study from 2008 trip to Mayo and have considered asking to be sent the for study on epilepsy.

Aug 11, 2016 · Epilepsy/seizure related in Epilepsy & Seizures

We believe he may have been have nocturnal seizures and last month from his description of an incident at a supply house he may have had a simple partial seizure. He is diagnosed as having right temporal lobe epilepsy. he has done the home eeg/ video monitoring after the initial eeg, sleep deprivation eeg and tilt table test. This was done 2014 after the initial seizure Dec 19 2013. He can not tolerate the recommended dose of keppra er 1000 mg. He was only taking 500 mg keppra er for the last two years. Was hoping vimpat would work but he has complained of the side effect, he has never looked up the side effect but I have. She wants him to take vimpat 200mg in morning and night but so far at 100mg morning and night with keppra 250mg at night the side effects are effecting him. What other studies can there be? I have looked up information on temporal lobe epilepsy and recently contacted epilepsy foundation in St. louis, Mo trying to get more information. They recommended adkins diet. We eat low fat diet and he is eating fruits and veggies, also exercises frequently. Our meat is locally grown and butchered very lean meat. It is crazy we were at Mayo in Rochester in Dec 2008 for other medical problems he had after pulmonary embolisms in Dec 2007.