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4 days ago · Functional Neurological Disorder in Brain & Nervous System

Hello Colleen @colleenyoung, I read the various tips provided by many members. ALL super great! One mentioned "avoiding the use of medical language" (or words to that effect). I found that it is true at times, less so at others. I have had both experiences.

I remember a doctor I was seeing about a sinus infection; when I explained my symptoms, I mentioned a "purulent discharge". He asked me: "And how do you know these big words?". I wasn't a child and it wasn't a compliment, it was stated in a very ironic and demeaning voice and a body language to match! Didn't go back.

But, I have met a lot of doctors who are the total opposite, so I would like to recommend the following: Don't change yourself to "adapt" to the doctors you will be seeing. Being prepared for your medical appointment is a positive thing, and if your vocabulary includes "Big Words", good for you! It only means that you know medical terminology that applies to your condition(s). If you find that your doctor is not receiving your information with a positive attitude, you can choose a different doctor. I did, and never regretted any of those changes.
A hug to all!
— Dee

4 days ago · CEA Blood Test results in Cancer

Hi @jarhead1. Yes, it has risen. When are you going to have the PET scan?
–Dee

5 days ago · CEA Blood Test results in Cancer

Hello @jarhead1. So sorry to hear your CEA is elevated again. Is this your first CEA since Sep 2018? I would certainly follow the doctor's advice and get a PET Scan immediately. A hug ….
–Dee

6 days ago · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

Hey @mari … Thanks, all we need is a lot of other people interested, so we can get some help in moving forward with these and many other ideas! 🙂 🙂

6 days ago · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

Hi Mari @mari. These are the three prescribed by my doctor at Regenexx to support the healing process before and after PRP (NOT covered by insurance): "OmegaPure EPA"; "CurcuPlex CR"; and "SynovX Tendon and Ligaments". You can't find them in a "regular" pharmacy and they are costly, but in my experience, they are well worth the money!!! For Stem Cells procedures, the supplement is different. I have not had the treatment and don't recall the name of the supplement.

Do you go to a Regenexx clinic? If so, the doctor you will have will tell you which supplements are needed (may be different for you). However, if you want to know more about these supplements, I can give you the name and phone number of the pharmacy used by my doctor at Regenexx.
–Dee

6 days ago · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

Hi Mari @mari, I TOTALLY agree with you! We should do something to change things! However, I believe it takes more than a petition. In line with that, a number of entities may be willing and able to help. I am thinking of various associations, including retirees associations; Investigative TV, newspaper, and cable journalists; and of course our elected officials.

What do you think?
-Dee

Mon, Mar 18 12:41pm · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

I didn't answer your questions @scsm! So here are my replies:
Q: How long did your PRP injection work for you? Was it a couple of months or longer?
A: Still working! Lower Back — Over 2 years and still OK. Knees — Over 1 year, but I heard a "crack" 2 months ago, as I hyper-extended my left knee, so I am having some pain now (going up the stairs). I fear I have a tear in the lateral meniscus! But didn't get it checked yet.
Q: Were you still having pain two or three months after your PRP injections?
A: Yes, but less pain. It really took 4 months to see progress. From the 4th month, the progress steadily grew for both lower back and knees. At around 20 months or so, my back was painless!
I will add that I fell twice (on steps) in 2018. I thought I would not be able to even move! But nothing like that happened. I had NO back pain, NO issues! My falls were about 23 months following the back procedures. I fell forward and down 3 flights of stairs in my first fall … Somersaulted down several steps and hit my back several times as I was falling, and ended up in the sitting position … NO back pain!
Q: What made you want to have stem cell injections instead of continuing the PRP injections?
A: The doctor suggested Stem Cells for my knees right away (in place of PRP), because Stem Cell treatments are a much better AND permanent solution. However, I was and still am taking Statins for my cholesterol. In order for Stem Cells procedures to be effective, you need to be off of Statins for 3+ months. My Primary Doctor did not agree with staying off the statins at that time. He wanted to see if PRP would be sufficient. Now, he agrees I can be off Statins, "IF" the pain, and/or tears in the meniscus reappear.
My doctor put me on certain vitamins that help promote the PRP and Stem Cell healing process. Different vitamins for the two procedures, I am still on the ones he gave me for the PRP!

If you have any additional questions, do send them my way! I will be glad to provide my experience!

–Dee

Mon, Mar 18 11:38am · Stem Cell Therapy for Arthritic Knees in Bones, Joints & Muscles

Good morning @scsm! My recommendation is that you read your policy very well and "dig" in it. I read in GREAT detail the studies and guidelines Aetna uses to assert that these are "experimental treatments" … UNBELIEVABLY OLD!!! The Golden Standard of the 1960s has little to do with current medical technologies! The Insurance Company does not benefit from "saving" on these procedures, because the cost of surgery (often repeated), physical therapy, nursing home care — if needed for recovery, etc. is not only a higher cost to the Insurance Company, but also to the person and society as a whole.
I am sure this will apply to many other types of medical coverage, so I may submit my research to my Representative in Congress — and see where that leads! What are your thoughts on the matter?
-Dee