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Posts (128)

Wed, May 22 11:16am · Need advice with heart issues in Heart Rhythm Conditions

@hopeful33250 — GREAT advice Teresa!!
@jadillow — I too experienced a lot of anxiety following a brain injury. It was both a product of the brain injury and of the consequences of the injury. My neurologist prescribed an anti-anxiety med and Therapy — I improved dramatically! Without the "anxiety" interfering with the healing process, the side-effect of the concussion slowly improved. Now, after a few months, I can say that I am doing much better!
–Dee

Wed, May 22 11:13am · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@colleenyoung @adair @sounder27 @windwalker

Interesting article (2006): https://www.gulfshoresutilities.com/pdf/pink_stain.pdf — According to this article — "Although pink staining is often caused by the bacterium Serratia marcescens, other bacteria may be to blame. …". Makes for an interesting read …

Wed, May 22 10:50am · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@colleenyoung @adair @sounder27 @windwalker

Hi all, I have lived in various US states and in Europe (military). I don't remember if I saw this pinkish stuff in Europe (too long ago!! But I can testify to the fact that I have encountered it everywhere else I have ever lived. This includes different parts of Texas, Maryland, Nebraska, Iowa, Virginia, South Carolina, and Florida.

Guess now we need to know how to get rid of the problem "at the source"! But how do we do that, if, as Dr. Falkinham mentions, the bacteria enters via the municipal/county water? It seems his study, aside from "mapping" where the problems are located in the US and Canada, may also help in providing support to his working theory. If so, I presume we need to wait until "someone" in Federal, State, or County government accepts the study, and decides to do something about it. But what can we do in the mean time?

I would say that if we could place some sort of equipment at the water's point of entry into our houses, it would be a GREAT option! Also, it doesn't have to be a house. The equipment could be placed in an apartment or other dwelling — They all have a "main" point of entry for the water. Let's all do a little research on the topic! What do you say?
–Dee

Tue, May 21 11:41pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@windwalker — Terri, I forgot to add that I live in a newer house, in Fairfax County, VA.

Tue, May 21 11:35pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

Thanks @windwalker and @adair. Yes, I have seen it in every house I have ever lived in, including my current house (shower door seal). What I also see are dark rings in the toilet of the guest bathroom. That happens if I forget to flush it every other week. Is that "black stuff" equally bad?
–Dee

Tue, May 21 11:59am · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@windwalker – Hi Terri, what does this "Pink Slime" really look like and where would you find it/see it? Thanks! –Dee

Mon, May 20 1:34pm · Astrocytoma and reoccurring Osteosarcoma in Cancer

@mmccarter62. I understand. Remember there is a "nework" of support available AND willing to help … Stay strong! — Dee

Mon, May 20 12:08pm · Astrocytoma and reoccurring Osteosarcoma in Cancer

@mmccarter62 — I can only imagine how your son's new diagnoses are affecting you both. You both are probably going through all sorts of emotions at this moment — It is so scary to know that something may be or is terribly wrong with our children (or grandchildren, as in my case). I know I felt the orthopedist had just punched me square in the chest, when he started with the words "I don't want to alarm you, but … " and the word "Oncologist" was the next punch. I felt as if I couldn't breath!

You are on the "right track" in seeking advice from other centers such as the Mayo Clinic. I would certainly encourage you to get information on how to reach them by phone and e-mail. Others have already given you information about Mayo. However, if you are interested in other Medical Centers, go on each of their websites; you will find they have a "coordinator" for care and consults. That's where I would begin.

Also, inquire about on-going or future Clinical Trials and see if your son is eligible for such programs. How to Search:

Learn how to use ClinicalTrials.gov search features to find studies:

https://clinicaltrials.gov/ct2/help/how-find/index

"Cancer
The National Cancer Institute (NCI) is the U.S. Government's principal agency for cancer research and training. Most other U.S. Government agencies that conduct cancer research, such as the U.S. Department of Defense and the U.S. Department of Veterans Affairs, do so in partnership with NCI. https://www.cancer.gov/

Visit NCI's Clinical Trials page: https://www.cancer.gov/about-cancer/treatment/clinical-trials?redirect=true
to find information on cancer studies, read about noteworthy clinical studies, find resources for researchers, and browse the results of clinical studies by type of cancer."

"NIH Clinical Center

The NIH Clinical Center in Bethesda, MD, is the research hospital of NIH. https://www.cc.nih.gov/
The NIH Clinical Center website provides information for potential participants, their families, and doctors about participating in clinical studies at the center."

I hope above information may help you to focus your efforts. If you need help, let me know and I will be happy to help you, if I can.
Keep strong! –Dee