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Posts (38)

Sep 14, 2018 · Nerve blocks and septum surgery in Ear, Nose & Throat (ENT)

Hello @marinelastef,

I apologize, I haven't experienced similar issues, so I can't address your concerns. However, I would like to send you a "virtual hug"!! I can only imagine how difficult this may be!

Can you share if you have you seen a neurologist?

Stay strong dear @marinelastef!


Sep 2, 2018 · Latent TB, side effects, and my Anxiety in Infectious Diseases

Hello @honeybtorres,

I am sorry to hear about your plight. I can only imagine how difficult this has been and is for you and your daughter!

I have Latent TB as well; however, on the advice of my Pulmonologist, I decided NOT to "treat" it. In my case, and I will restate — "In My Case", she said that the negative side-effects of the meds far outweigh the benefits. The negative side-effects she mentioned are those on the liver. By the way, my liver is perfectly fine.

The reason I emphasized " in my case", is that this may not be the correct path for you, or others. For instance, your future profession (Nursing) may require you to have been prophylacticly treated. I am not a doctor, so my health care decisions are based on that which, at least at present, appears to be "my" best approach.

It certainly can be confusing! As I explored the "best option", I researched medical literature and of course, received medical advice — 2 Infection Disease doctors left it up to me, they didn't see urgency or a mandatory need to begin treatment. My Pulmonologist, as I mentioned, does not want me to begin any treatment for Latent TB. My Rheumatologist vehemently disagreed with the Pulmonologist. He believes I must do the treatment, because he will not be able to treat me with an immunosuppressant to counter a flare-up of any Autoimmune Diseases (I have symptoms of a few, but testing is negative). My Primary Care doctor left it up to me.

Yes, confusing and frustrating, to say the least! As I said, I am not a doctor, so my words are based on my experience and that of others I have read about. But I would encourage you to receive medical advice from specialized areas of Medicine. At a minimum, from Infectious Disease, Pulmonology, and Primary care. If you have any other ailments, I would request opinions/support from those specialty areas. In my case, it was Rheumatology; in yours it may be a specialist to address you anxiety and panic attacks.

If there is one thing I've learned along the way, is that we must be our own advocates. And very importantly, know that you are not alone dear Honey B.

Noticed I didn't use "Poor" Honey B? That's because you are not!

Hugs to you and your daughter … D.

Aug 26, 2018 · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

You are so funny @beryl! The Opthamologist doesn't see the need for surgery just yet. He said that maybe in 2/3 years John may need to have cataract surgery in one eye, but the doctor didn't see it happening before then. D

Aug 26, 2018 · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

@lioness, I am sorry, I said glaucoma, but I meant cataracts (!!!). D

Aug 26, 2018 · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

Hello @suemer,

Can I ask you how much you pay for 120 pills at Walmart? It costs $23.60 at Amazon. Thanks! D

Aug 26, 2018 · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

Hello again @lioness,

Thank you for the great feedback! It really helps to know that it appears to be helping you! Also, I am the one with a beginning MD, John doesn't have it, though he does have the beginning of Glaucoma, so he will take the supplement as well.

About the cost: You may want to try Amazon, I found the supplement on Amazon for about $11 dollars cheaper than CVS:


I ordered it yesterday and my first bottle will arrive on Monday or Tuesday. Note that Amazon also offers a periodic shipment for "ANOTHER" 5% discount! Not bad! I didn't subscribe yesterday because I wanted to hear from others on the forum; but now that I have heard from a few (including you!!) I will subscribe to the periodic shipment and save even more!


Aug 26, 2018 · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

You are very welcome Beryl! It's available at CVS, but I have ordered it from Amazon because the price difference is approx. $11 dollars!


Enjoy the day! D