Welcome back and glad that you had a good holiday. I feel like I actually have some pretty good news. My ID ordered a CT scan of my chest before my last appointment with him which was about 2 weeks ago. He said that the scan showed that I have no nodules or cavities and that my lungs look good. He and my pulmonologist reviewed my chart and CT scan, and agreed not to start any treatment for MAC at this time, based on the scan and also because I really don’t have any symptoms. They did, however, agree that my pulmo doc will treat my bronchiectasis and the pulmo doc feels that by treating it, that may be all the treatment I will need. I have an appt with the pulmo doc on this Thursday, so am keeping my fingers crossed that he will get me started on the treatment and that I get some relief from the chronic cough and shortness of breath, which really are my only symptoms.
In the meantime, last Friday I had a heart catheterization as I have to have an aortic valve replacement in the next few weeks. I was diagnosed with aortic stenosis sometime ago, and have the cardio doc has been watching it with echocardiograms yearly. Because of this, it is sometimes difficult to tell if the shortness of breath is caused from the bronch or the stenosis.
I feel very encouraged and also fortunate that I am not going through the many symptoms and difficult treatment that many of you are having to endure, but please know that my thoughts and prayers are with each and every one of you. Also, I will continue to pray that a better, more modern treatment and hopefully cure will be discovered very soon. Linda (mimi68)