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7 hours ago · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

Three tests were done – Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed a low probability of NETs (this was followed by open abdominal surgery to rescect ileum and liver. The April 2016 showed a 'high, 80% probability) and my wife was NED at that time.
The third in Oct 2016 showed a 26.7% probability and was followed in Dec 2016 with open abdominal surgery in Dec 2016. Dr. Haldanarson's office notes were – She has had three NETests done. The study done on September 28, 2015, was 26.7, which falls into the low-risk range; the study April 15, 2016, was 80%, or in the high-risk range; and lastly, it was done on October 14, 2016, and it was down to 26.7. I do not know if the NETest is reliable in her situation given the high suspicion for recurrent tumor in the setting of a low-risk result.

Dr. Kidd at WREN labs called her case 'interesting'. He requested and we sent them my wifes labs and surgical report.

7 hours ago · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

We’ve been treated at Mayo for neuroendocrine tumor for five years. During that. My wife had three net tests from WREN while they were developing their product. The results of the net test were inconsistent. Our oncologist at Mayo thought the net test was interesting, but I don’t believe he put a great deal of faith in it.

Nov 15, 2019 · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

My wife submitted 4 tests to WREN labs during their initial roll out. They paid for the test. We shared this with her Mayo Oncologist. The numbers for the test varied widely and I didn't find it valuable and while her Oncologist was interested in the methodology, he didn't rely on it even as an element for her care plan. This was a couple of years ago, so things may have changed.

Nov 23, 2019 · Telephone consult in Visiting Mayo Clinic

I totally agree. I believe some state laws may need to change so the medical community can practice medicine across state lines.

Nov 22, 2019 · Telephone consult in Visiting Mayo Clinic

This is disappointing to hear. I would Mayo has a stated policy on this. We all know it’s the future in a number of situations.

Nov 12, 2019 · Possible NET with No Evidence of Tumor: Mediastinal Mass in Neuroendocrine Tumors (NETs)

My wife did it 3 separate times over a year or more when WREN covered all the costs during their rollout. The results were erratic. Her specialist thought they were interesting, but that’s all. It didn’t help guide her care plan.

Oct 28, 2019 · Possible NET with No Evidence of Tumor: Mediastinal Mass in Neuroendocrine Tumors (NETs)

My wife and I have been to Mayo 16 times in the past 4 years for two surgeries and many office appts. In face, we will be there next Monday all day. If you have specific questions about staying in Rochester and getting to appts., please let me know. Its super easy and convenient. How far is your drive to Rochester.