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Tue, Apr 28 10:49am · Neuroendocrine Cancer Support Group Meeting FL in Neuroendocrine Tumors (NETs)

I assume the time is Eastern?

Sat, Apr 25 7:53am · Chromogranin A Level was 539 in Neuroendocrine Tumors (NETs)

I would also add that my wife's CGA levels were above 1000 and then back to normal (less than 49 I think) following surgery and then back to the 600's. The post by Teresa is a good one. I think most NETs specialist oncologists would tell you that elevated CGA levels are only one piece of the puzzle and scans are what really provides them with insight – especially a gallium scan.

Wed, Apr 8 9:39pm · Are you getting cancer treatments during COVID-19? in COVID-19

Since the virus shut us down nearly 4 weeks ago, my wife (NETs) has had one appointment locally (Appleton, Wisconsin) for an Octreotide injection and labs. I couldn't go in with her and they checked her temp and asked her the standard safety questions. She has an appointment at Mayo Rochester on April 29 for MRI, labs, office visit and Octreotide injection. Rochester is a 4 drive for us, which is no issue, but due to the timing of her very early morning MRI appointment, we needed to spend the night. We didn't want to break our Covid-19 'safety sea' by spending a night in a hotel and eating out (take out actually). That's why she is getting her MRI, labs and Octreotide here locally through ThedaCare (a Mayo Member). The MRI and labs will be pushed to Mayo and reviewed by radiology and her oncologist. We have her office appointment the same day, only via a phone call. This is a first for us. Once the virus is cleared up, we intend to return to the Rochester campus.

Sun, Mar 29 5:18pm · Are you getting cancer treatments during COVID-19? in COVID-19

This video is worth viewing-

Sun, Mar 29 8:13pm · Are you getting cancer treatments during COVID-19? in COVID-19

I agree. It helped reduce my anxiety that the little Covid critters aren’t just to jump me and cause problems.

Thu, Mar 26 6:25pm · Are you getting cancer treatments during COVID-19? in COVID-19

My wife has her blood work and Octreotide injection scheduled for next week. Its at the ThedaCare Cancer Center in Appleton and we've heard nothing about any cancellations. My wife has an appt at Mayo the end of April and have not heard about any changes. Depending on where things are in a month, we may reschedule since we have to stay overnight in a hotel and we want to avoid getting sick since she is on Afinitor (oral chemo) and has a compromised immune system.

Thu, Mar 12 1:03pm · Neuroendocrine Cancer Support Group Meeting FL in Neuroendocrine Tumors (NETs)

Colleen, I meant the in-person (and online) patient directed conferences that Mayo runs out of Florida.