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Oct 3, 2018 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

Here is a link you should find useful. Most either will take you the building you need to go to or there are busses. https://www.tripadvisor.com/SmartDeals-g43466-Rochester_Minnesota-Hotel-Deals.html

Oct 3, 2018 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

Uggg. I hope you can find answers. I can feel your frustration.

Sep 25, 2018 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has been seen @ Mayo 3 1/2 years. She’s has 2 surgeries, regular labs, scans and office visits. We are a 4 hour drive.

All will agree results are better when seen at a high volume speciality center like Mayo. This is based on evidence.

If there are no recognized NET specialists ‘in- network’, then you should file a ‘grievance’ with your insurer. I’m happy to help you with the language and letter. I’ve been through this several times.

Sep 14, 2018 · NET - Insulinoma in Neuroendocrine Tumors (NETs)

My wife had two major NET surgeries at Methodist. Everything went as expected and she was well taken care of by the highly trained, caring and compassionate staff. Prayers to you for your successful surgery.

Aug 1, 2018 · PRRT has been approved by the FDA Jan 26, 2018, as expected in Neuroendocrine Tumors (NETs)

The first MR after 3-months on Afinitor 10 mg daily showed stability to slightly improved liver tumors (50+). No major side effects. CG-A and 5HIAA all improved (not to within normal ranges however).

Aug 1, 2018 · PRRT has been approved by the FDA Jan 26, 2018, as expected in Neuroendocrine Tumors (NETs)

My wife Lynn as a low level of expression of somatostatin receptors. Dr. Halfdanarson had Mayo pathologists call back the slides and stain for somatostatin receptor type 2A to see how much of the receptor truly is present on the tumor cells. It turns out that its does not meet the minimum threshold for PRRT. Therefore he started her on Afinitor in March 2018.

Jul 26, 2018 · 68Ga DOTATATE Positron Emission Tomography (PET) Now at Mayo Clinic in Neuroendocrine Tumors (NETs)

Teresa, yes, the GA-68 lasts 2 to 2.5 hours. There is an injection and then you wait for it to 'filter' in order to begin the scan. 100% of the costs were covered by insurance after obtaining preapprovals. In our case, there were no issues and the results provided reliable and accurate information to the oncologist.