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Sun, Mar 29 5:18pm · Are you getting cancer treatments during COVID-19? in COVID-19

This video is worth viewing-

Sun, Mar 29 8:13pm · Are you getting cancer treatments during COVID-19? in COVID-19

I agree. It helped reduce my anxiety that the little Covid critters aren’t just to jump me and cause problems.

Thu, Mar 26 6:25pm · Are you getting cancer treatments during COVID-19? in COVID-19

My wife has her blood work and Octreotide injection scheduled for next week. Its at the ThedaCare Cancer Center in Appleton and we've heard nothing about any cancellations. My wife has an appt at Mayo the end of April and have not heard about any changes. Depending on where things are in a month, we may reschedule since we have to stay overnight in a hotel and we want to avoid getting sick since she is on Afinitor (oral chemo) and has a compromised immune system.

Thu, Mar 12 1:03pm · Neuroendocrine Cancer Support Group Meeting FL in Neuroendocrine Tumors (NETs)

Colleen, I meant the in-person (and online) patient directed conferences that Mayo runs out of Florida.

Thu, Mar 12 11:39am · Neuroendocrine Cancer Support Group Meeting FL in Neuroendocrine Tumors (NETs)

It would be nice to continue the support group on line. I'm seeing quesitons on Covid-19 as it relates to NETs patients.

Thu, Jan 23 10:29am · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

Three tests were done – Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed a low probability of NETs (this was followed by open abdominal surgery to rescect ileum and liver. The April 2016 showed a 'high, 80% probability) and my wife was NED at that time.
The third in Oct 2016 showed a 26.7% probability and was followed in Dec 2016 with open abdominal surgery in Dec 2016. Dr. Haldanarson's office notes were – She has had three NETests done. The study done on September 28, 2015, was 26.7, which falls into the low-risk range; the study April 15, 2016, was 80%, or in the high-risk range; and lastly, it was done on October 14, 2016, and it was down to 26.7. I do not know if the NETest is reliable in her situation given the high suspicion for recurrent tumor in the setting of a low-risk result.

Dr. Kidd at WREN labs called her case 'interesting'. He requested and we sent them my wifes labs and surgical report.

Thu, Jan 23 9:48am · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

We’ve been treated at Mayo for neuroendocrine tumor for five years. During that. My wife had three net tests from WREN while they were developing their product. The results of the net test were inconsistent. Our oncologist at Mayo thought the net test was interesting, but I don’t believe he put a great deal of faith in it.

Nov 15, 2019 · NETest from WREN Labs in Neuroendocrine Tumors (NETs)

My wife submitted 4 tests to WREN labs during their initial roll out. They paid for the test. We shared this with her Mayo Oncologist. The numbers for the test varied widely and I didn't find it valuable and while her Oncologist was interested in the methodology, he didn't rely on it even as an element for her care plan. This was a couple of years ago, so things may have changed.