Yes, I have and a specialist twice.
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No they have not. I have been to see a neuroopthalmologist twice over the last 5 years at Mayo. Offered drops to numb the eye, which helps at times. Also drops for dryness. They are not sure if it’s part of my migraines or not. Really no solid diagnosis. Someone mentioned a retinal specialist…not sure if that is any different. Also hoping to find others that have had luck with Botox for Migraines for a year and then have it stopped.
Has anyone had constant eye pain and found relief? Also has anyone taking Botox for one year, had great results and then it quit working? I have read you can build up antibodies to it? Now what? I need to be able to work and function at home. Have tried countless oral meds without any luck. Some make it worse some don’t do anything.
They have informed me they are not migraines or trigeminal neuralgia. Best guess… atypical facial pain that is on the left side and runs up by temple and scalp. All dental and endodontic stuff looked into as well. Root canal only took away tooth sensitivity. Indocin at 75mg helps on the bad days, but i would rather not take it every 8hrs every day. Lots of risks using that over a long period of time.
I have actually been battling left sided scalp and temple pain since fall of 2012. Tried lots of different antidepressants as I have anxiety issues too. Even tried Lyrica. Everything makes the pain worse or starts even more pain that makes my eye and eye socket and the rest of left side hurt worse. Nortriptiline was helping somewhat then went off of it after 6 months as it was causing eye pain and vision changes. Pain flares now I sparingly use iboprofen to settle it down to dull ache. Indomethicin 75mg for bad flare. Neurologist recommended I try to tolerate taking that every day but the PPI bothers my BP and I have concerns about long term use of the Indicin. I am trying out compound now on the facial and temple areas that helps somewhat….just trying to manage best I can…..
New to this group. Hello! I have learned a few things from other conversations. I have chronic facial pain and most medications make it worse or add on a headache. Also struggling with anxiety for about the same time. Most anti-depressants make my eye hurt worse. Any others out there with the same issues? Neurology has done all the can…