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Posts (10)

Mar 11, 2017 · Pacemaker recipients. in Heart Rhythm Conditions

You have a good outlook. I discovered my cardiomyopathy by happenstance as Weill. Had the pacemaker put in just over a year ago. I’m 53 now but trying to keep the same outlook

Dec 12, 2016 · Depression in Heart Disease in Heart & Blood Health

I know how your son feels. I was diagnosed with severe restrictive cardiomyopathy unexpectedly. No explanation and no family history. I was extremely active at 50 years old and suddenly warned I had to stop how I was living until they could get me a bit better. Medication worked for about six months. Earlier this year I got a pacemaker at 52. It is easy to get depressed but I began looking at life a bit different. Its been hard but I am determined to get active again and continue trying to keep my quality of life as high as I can. Keeping busy has helped a lot

Sep 12, 2016 · Seasonal weather changes and bradyarrhythmia in Heart Rhythm Conditions

Funny. I was actually going to start reading up on this. I’ve noticed this summer difficulty breathing at times. Suddenly I am getting excessive nosebleeds which the doctors don’t think is cardiac related but coming as a side effect of medications I’m taking for cardiomyopathy. During the colder season a side effect of bisoprolol that some patients have complained of (difficulty walking) seemed to occur

Aug 13, 2016 · Pacemaker recipients. in Heart Rhythm Conditions

Much better. It has really helped to read about how well other people are doing and how active they have become

Jun 17, 2016 · Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Possibly. I’m listed as nonischemic cardiomyopathy

Vivian Rivera Drohan

Jun 16, 2016 · Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

I have to say some of the posts I’ve read are very helpful. Makes me feel less confused.

I also find it hard to breathe sometimes. The worse is I’m gaining weight although I’m eating less. I think it’s just the lack of exercise but I’m starting to get alarmed because I’m sure extra weight isn’t helping.


May 27, 2016 · Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Thanks for your comments. They are helpful. I was diagnosed with an ejection fraction of 25 originally. Got it up to 30 then it went down to 22. I am trying to figure out what normal is going to be from here on. It sounds like I will have good days and bad. My pacemaker has a defibrillator and an extra Leed.

May 27, 2016 · Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Thanks for replying.

I am 52 and at the age of 50 went to see a cardiologist for a simple stress test. Instead a sonogram and ekg showed severe cardiomyopathy. I have no family history of heart disease at all and never suffered from anything related to the heart. I was running half marathons with no issues. I was beyond surprise when I was suddenly diagnosed but second opinion confirmed everything. For almost a year and a half we tried to improve the situation with medication quinipril
and carvidilol main medications. For about six months I was a bit better but then went downhill and it was recommended I have a pacemaker put in. I have great doctors that I trust but I just don’t know how I’m supposed to feel. My chest doesn’t hurt and I don’t have Afib, but I am constantly exhausted. It’s been 3 months with the pacemaker. They had to change carvidilol to bisoprolol because my short term memory was so affected by carvidilol. I’ve gone from very active to struggling with exercise.