About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (72)

Mon, Sep 2 5:02pm · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

Hi Dan,
As you have no doubt heard, every PD case is different. I’m Steve , I’m 74 and 4 years after diagnosis of Agent Orange presumed PD, it is not my main concern. I’ve got other things that are harder to handle on a daily basis like some of the other people have already responded. Just keep things in perspective and deal with what you need to each day. I firmly believe I’ll see a cure or at least some sort of indefinite remission in the next few years. That makes this a temporary inconvenience. Works for me. Do your part – take your meds, exercise, and stay positive. And keep all your doctors in synch.

Sun, Aug 25 7:25pm · Constipation and Parkinson’s. in Parkinson's Disease

My wife tried my Miralax on a cruise last week and it cleaned her out in a matter of minutes and she was in bed all day missing the port that was the main reason for the trip. Apparently this happens once in awhile. I’d advise anyone trying it for the first time to try a small amount first just to see. I’ve been on it for a couple years with no problem.

Wed, Feb 13 9:41am · Loss of smell and Parkinson's in Parkinson's Disease

It isn’t your fate unless you let it. I plan (at 74) to keep asking and fighting. I am very interested in the adrenal bit because I am in the middle of testing after a coincidental finding of a hopefully benign tumor on my adrenal gland. I have not compared symptoms but I’ll bring it up with my Endocrinologist. If the Sinemet didn’t control PD symptoms so well I’d really wonder.

Oct 11, 2018 · Symptoms: Could this be Parkinson's? in Parkinson's Disease

That isn’t how it started with me, but everyone has a different experience.

I’d really suggest you see a neurologist. Then you can get an educated diagnosis if it is and relief if it isn’t.

Good luck.

Steve

Jul 4, 2018 · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

You might also consider Glucerna. Less sugar load.

Steve  

May 29, 2018 · Getting Prepared for Summer with PD in Parkinson's Disease

I kick like I’m in a race. It got some better once I was diagnosed and started Sinemet. Started Clonazepam recently but I don’t know if it affects the kicking yet. 

Steve 

May 17, 2018 · CBD oil for tremors in Brain & Nervous System

I have agent orange presumed PD without tremors yet so I’ll listen in for the future. 

Steve  

May 7, 2018 · Raynaud's Syndrome in Autoimmune Diseases

I’m in. A quick read of the posts puts me right into this group. I’m in Texas and carry a sweater and often gloves everywhere I go. People think I’m nuts. Good thing I’m 73 and some eccentricity is expected. Stores and even church cause my hands to go frozen and burn because they are so cold. I’ve also got Parkinson’s and a few other things and no idea yet if any of them are related. I’ll ask at my next Dr visit but I would assume not or it would have been mentioned before.