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Wed, Jan 16 4:46pm · Chronic small bowel obstruction from adhesions in Digestive Health

Just to share my own story…I started having horrendous attacks in September of 2013. I went over two years of seeing many GI doctors and no one had an answer (was even told it could be nerves or stress!). Fast forward to November 2015 and I ended up in the hospital because the attack was so severe. They finally caught me "in" an active attack and did a CT scan. The good news was they finally knew it was "small bowel obstruction". The bad news was they told me there wasn't much to be done about it. I had 30+ abdominal radiations back in 2003. After two more years of attacks, hospital stays, NG tubes I was desperate. I was told that if I had a very severe attack that couldn't be fixed with an NG tube I would have to have emergency surgery. The problem was supposedly this could cause more adhesions and hence make me worse. The attacks were coming once a month. I finally decided to see a laparoscopic GI surgeon in NYC. He was affiliated with Mount Sinai. He was amazing**. He asked me "Why hasn't anyone tried to help you?" I broke down. He spent a lot of time talking to me. He felt there was less than 5% chance of developing new adhesions if he could succeed with laparoscopic surgery. He would know more when he actually went in. I agreed to have regular surgery IF when he looked he thought it was the only choice. Bottom line was I really couldn't do worse than I was doing. He successfully did the laparoscopic surgery and removed 4 feet of small intestine and a small amount of large intestine. I had radiation enteritis. This was 7/31/17. I cannot say that recovery was simple, but I have my life back. The trade-off is that have diarrhea most of the time, but that was happening anyway. I now am working with a GI doctor to help me with this. I avoid certain foods and he is trying some different meds to regulate me. I think I just have "short bowel' syndrome. I eat lower fat, higher carb diet. I know alcohol can be a trigger. Each person is different. I'm also a vegetarian /vegan. My diet is probably 60/40. Anyway, I hope this helps anyone who is suffering. **I have to say this particular doctor didn't take insurance. We paid up front and I ended up getting about 60% back from my insurance company as I had a PPO. Worth every cent.

Dec 22, 2017 · Chronic small bowel obstruction from adhesions in Digestive Health

I had Non Hodgkins Lymphoma in 2003! It was not a mass in my small intestine, it was vaginal. It happened that the radiation got me 11 years later. I wish you health and good luck. Did you have chemo, retuxan and radiation?

Dec 22, 2017 · Chronic small bowel obstruction from adhesions in Digestive Health

Hello,
I went through over 35 attacks and 3 hospital stays from September 2013 until this July 2017. I suffered terribly. I was getting week long attacks almost every month the last year. I saw many doctors before this. I was told that basically, I had to live with it. I should go to the emergency room and get the NG tube when needed. I finally found a doctor in NYC. He does laparoscopic GI surgery only. He is part of a group. I have no idea where you live. I also going to say he doesn’t take insurance, but if you have a PPO you should get at least half back. He took out four feet of small intestine and a small amount of large. I had radiation therapy in 2003. It was damage called radiation enteritis. I admit the recovery from the surgery is long. I am 5 months past and I am having some “bathroom issues”. The first six weeks after surgery are not the most fun you can have! However, to date, I have not had an attack. Please feel free to respond if you want more information.

Apr 7, 2017 · Chronic small bowel obstruction from adhesions in Digestive Health

Ginny,
Isn’t it insane what we have to compare it to in order to feel better! LOL
I’ve had at least 35 attacks. I try to forget about them during the normal times. I think low fiber helps a bit.
It’s worth a try. Remember, whenever you feel one coming on, don’t eat. Drink as you can. Once it ends eat broth, juice water etc for 24 hours. Then slowly go back. Good luck! Lori

Apr 6, 2017 · Chronic small bowel obstruction from adhesions in Digestive Health

I have been having bowel obstructions for almost 4 years. No one could tell me what was going on. I was getting them almost monthly. Worst pain I’ve ever gone through. At one point I lost 17 lbs. In October 2015 I finally ended up in the emergency room. This is when they finally found the small intestinal obstruction. The thought is that they are caused by abdominal radiation I got back in 2003-2004 for Non-Hodgkins Lymphoma.
I sometimes go 3-4 months without an attack, but that is rare. They are part of my life.
The surgeon told me that if I end up back in the hospital, it’s NG tube again. If NG doesn’t work its emergency surgery.
The problem with surgery is that there is a 60% chance of it creating more adhesions, hence I’d be worse off.
I try to each low fiber even though I am a vegetarian. I cook my veggies. I don’t eat any raw. No corn. I peel fruit like apples. Honestly, I feel I never know what helps and what doesn’t. It’s beyond frustrating and not an easy way to live. I’ve gotten attacks on vacation (totally bedridden in Paris!). I am in horrible pain for 24-48 hours. Then I’m sick for 4-5 more days. I feel for everyone battling this.

May 26, 2016 · Bowel obstructions caused by adhesions following abdominal surgery in Digestive Health

Hi,
I hold different positions for 2 minutes each (eventually to build up to 10 mins each). Harder than it sounds! I’m supposed to do 1/2 hour 5-7 days a week. This is to build strength/balance and make you more limber.
Basically what the Clear Passage therapy does is to apply hands on, sustained pressure to specific restricted or adhered areas. It’s called the Wurn technique. Once you are home, you use massage tools , including a ball, to continue trying to decrease adhesions.
I was supposed to start this a week to 10 days after finishing the therapy on 4/16/16. I was in Europe for 10 days shortly after leaving CP. I started to do them, and then I had the attack on 5/20. I’m just about recovering now on 5/26. Sadly I seem to be one of the only people that obstructed so soon after.
I am also doing elimination diet. Starting with wheat. I am almost 4 weeks into the 6 week test. Next is dairy, then I try eliminating sugar.
I am 5’7 1/2″ tall. My “normal weight is around 129-132. I am now 114 lbs. I am not happy.
So, that’s my story!
Lori

May 25, 2016 · Bowel obstructions caused by adhesions following abdominal surgery in Digestive Health

Beginning in Sept. 2013 I started having horrendous abdominal attacks. Finally one landed me in the hospital with a small bowel obstruction.They inserted an NG tube and watched me for 3 1/2 days. Avoided surgery, but I have an attack almost every month now.
I went for over 2 years undiagnosed (saw 5 GI doctors). Finally in Oct. 2015 I went to the ER by ambulance, they finally found I have small bowel adhesions. This is what caused the obstruction.
I had 30+ pelvic radiations back in 2003.
They say surgery can cause even more adhesions. I’m at my wits end. Living in fear of an episode every day.
I even went to Florida (I live in NJ) for a week to try Clear Passage. It’s a non invasive therapy for this problem. Sadly, I had an attack within 5 weeks of coming home. I will continue trying the exercises etc I learned, but I’m terribly disheartened.
Has anyone had any luck with anything?
By the way I’ve had 21 attacks in 32 months.