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Oct 21, 2016 · Multiple Myeloma in Blood Cancers & Disorders

It is a huge comfort and spirit boost to hear all of your stories. Emotionally, it has given me the guts to ask what I need to and put people in their place when they make me feel like a hypochondriac. Doctors appt. today. Let you all know what happens. Thank you for your support my new friends!

Oct 21, 2016 · Multiple Myeloma in Blood Cancers & Disorders

I had a bone marrow biopsy two days ago. Haven’t seen results yet. Had a ct of left and right humerus and I see it mentions osteopenia. I see the Oncologist today and I have many, many questions for him. My husband is coming with me this time. He needs to hear what I hear.

Oct 20, 2016 · Multiple Myeloma in Blood Cancers & Disorders

When I hear don’t worry, or stop worrying, it infuriates me . Don’t tell me not to worry, tell me where I am at, what to watch for and explain explain explain the tests I am given. I sometimes feel deserted on a desert island. All of you bloggers are sending me life lines. Thank you.

Oct 20, 2016 · Multiple Myeloma in Blood Cancers & Disorders

Your blog has helped me tremendously, I went for labs and a bone marrow biopsy yesterday and made my husband watch the biopsy! He came out with a different attitude after that. Tomorrow we meet with my oncologist, Dr. Tricot to go over all results, including the CT I had on my left and right humerus. I want him to give my husband (and me) a clear diagnosis of where I am at in this journey. My Dr. said it would be okay to get flu and pneumonia vaccinations, but I am waiting to see him before I do. This past months have not been going well. I had a respiratory infection, I keep getting cold sores on my lips and my spine and pelvis have been causing my a great deal of pain. Hopefully we can get things cleared up tomorrow. And, as much as I don’t want to, I am going to ask for pain medication to have on hand for those really bad days. I have also starting logging in a journal how my days are going. I don’t know about you, but every day is a surprise. Thanks for your input. It makes me feel a lot better. 🙂

Sep 28, 2016 · Multiple Myeloma in Blood Cancers & Disorders

I was told to take calcium and 5000mg of Vitamin D every day. Unfortunately, it nauseates me so I only take it once a week. I am surprised you are not having MRI’s quarterly to check for lesions.

Aug 4, 2016 · Current diagnosis is Amyloidosis and multiple myeloma in Blood Cancers & Disorders

I had no symptoms. It was discovered in a blood test for neurological
issues. I am in the smoldering stage at the moment.

Aug 4, 2016 · Multiple Myeloma in Blood Cancers & Disorders

Right now, I’m doing 3 month blood panels. I have to go and have a ct scan of my humerus and have another bone marrow aspiration. The biggest issue I am having right now is trying to help my husband understand that myeloma is a cancer and even though I still feel pretty normal and don’t show and outward signs of illness he still doesn’t get it. I recently had a severe respiratory infection and ended up in the ER. The doctor that treated me was smart. Blood was taken but my white count was in the normal range. She looked at my records and saw smoldering myeloma and treated me with a strong course of antibiotics. My question is, if I do have an infection, are my white blood cells going to rise to attack the infection?

Jun 18, 2016 · Current diagnosis is Amyloidosis and multiple myeloma in Blood Cancers & Disorders

Forgive my ignorance, but what is SCT? Hope you are doing well.