Great explanation. I’d be interested to know if anyone with nets has had their gene study done to determine heredity. My gene study showed a mistake in my genes but heredity inconclusive at this point.
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To my knowledge a hospital must treat you if you go to ER. Otherwise try VSL probiotic and stay on it. Research probiotic foods and avoid sugary foods and gluten. Try any calming activity you can. I feel for you and have a brother without insurance having moved to another state. We need insurance in America to cover these situations.
Best to have appt. drs there are great about working with your schedule but they need to know
Problem and history of tests, what other doctors have been seen. They want CDs of your imaging when you arrive which you take to their download station. They really are wonderful there but see many patients and you should make an appt. fax a one-page letter with important info and tell them your availability. When you are a Mayo patient some airlines don’t charge a change of itinerary fee. Expect a 10 day stay at Mayo in Rochester, MN for them to schedule tests. Good luck.
I was also diagnosed with small bowel cancer called neuroendocrine or Carcinoid Cancer. Surgery at Mayo and they got it all. Bloodwork every 6 mo and scan every year for probably next 15 or so years (I am now 72). How are you doing post diagnosis?
It would seem that some of the tests would have shown if something was stuck in your stomach. Is it possible you have a need to relax your rectal and stomach muscles? A therapy called pelvic floor panel may be helpful. My significant other is going through that therapy and it seems to be helping. Just a suggestion. Good luck. I hate to think of you suffering.