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Posts (68)

2 days ago · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

You were fortunate to have a doctor admit not knowing how to treat but willing to refer to someone who does. I went for seven years before someone diagnosed my Carcinoid cancer which was the underlying disease of my MP.

2 days ago · Carcinoid cancer in Neuroendocrine Tumors (NETs)

I had surgery at Mayo Clinic in Rochester, MN in 2016. 3 feet small bowel, 12 tumors, 13 lymph nodes removed. Don’t Have syndrome but lots of pain from adhesions. Have had scans past three years showing no return. Every 6 mos blood work.
Diagnosed during exploratory. Original diagnosis was Messenteric Paniculitis. Now am followed by oncologist at Dana Farber Cancer Institute.

2 days ago · Sphincter of Oddi Dysfuncfion in Digestive Health

I appreciate this post. I get frequent pain in liver area below right rib. Don’t recall any specialist mentioning SOD. I have an enlarged fatty liver and gall bladder removed about 40 years ago. Thanks for something I can ask a doctor about.

2 days ago · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

I understand the fear of recurrence as I am approaching my third year post surgery. Knowing i’m not alone and that I can rely on this forum of people who will be a great support system if it happens is comforting.

Oct 23, 2018 · Chronic small bowel obstruction from adhesions in Digestive Health

Great explanation. I’d be interested to know if anyone with nets has had their gene study done to determine heredity. My gene study showed a mistake in my genes but heredity inconclusive at this point.

Oct 20, 2018 · Trying to recover from a c.diff infection in Digestive Health

Try doctor recommended VSL kept behind the counter in fridge – you have to ask the pharmacist for it and I get mine from the pharmacy at Hannaford Supermarket

Oct 18, 2018 · Trying to recover from a c.diff infection in Digestive Health

To my knowledge a hospital must treat you if you go to ER. Otherwise try VSL probiotic and stay on it. Research probiotic foods and avoid sugary foods and gluten. Try any calming activity you can. I feel for you and have a brother without insurance having moved to another state. We need insurance in America to cover these situations.

Oct 9, 2018 · info AND TIPS ABOUT GOING TO mayo in Rochester without an appt in Visiting Mayo Clinic

Best to have appt. drs there are great about working with your schedule but they need to know
Problem and history of tests, what other doctors have been seen. They want CDs of your imaging when you arrive which you take to their download station. They really are wonderful there but see many patients and you should make an appt. fax a one-page letter with important info and tell them your availability. When you are a Mayo patient some airlines don’t charge a change of itinerary fee. Expect a 10 day stay at Mayo in Rochester, MN for them to schedule tests. Good luck.