Write a one page letter to Dr Pardi or Dr Alexander at Mayo Clinic Gastro Dept in Rochester, MN. Explain your symptoms and pain level, and state what tests you have had and what doctors you have seen and results or non results. Ask for an appointment. You will be contacted with an appointment followed by a schedule for bloodwork, scans, consults. Expect to spend 10 days. They are very thorough. I consented to an exploratory and was diagnosed with Carcinoid Cancer. My MP was a symptom of that underlying rare cancer which local surgeons and specialists were never experienced to know what to look for. Book a flight on Delta Mayo. Stay at hotel right across from Mayo bldg. Mayo will send you a list of places to stay. Good luck.