In the above post That should be Sarna anti itch lotion.
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I have also been recently diagnosed with Grover’s on my back and waist. I am a 67 yo male so am more typical. My dermatologist prescribed a cortico-steroid cream which has resulted in some improvement. He also recommended Sensa anti itch cream which also gives relief from the itching. BTW, mine came out during chemotherapy for hairy cell leukemia in September and is only now starting to resolve. From what I read, it can it can erupt when there are other health issues, and is seasonal.
My doctor said my spleen was enlarged both times my HCL was active. I am back in remission for the second time, after my second round of chemo. It is my understanding that an enlarged spleen is usual with HCL. At one time removal of the spleen was a usual treatment for this.
Thank you for the references. I will discuss secondary cancers with my oncologist at my next appointment. As far as side effects of cladribine, it usually has minimal side effects. No nausea or hair loss. This time I broke out in an itchy rash which I do not remember having after the first course 4 years ago. It is just starting to abate now, just over a month since I left the hospital. I found some reports of a study a few years ago that said this was common for 57% of cladribine recipients. After the treatment my white cell count was critically low, so I received a neulasta shot which resulted in a dramatic improvement after only 2 weeks. This is the same as I experienced after the first course.
Anyone here fighting hairy cell leukemia? I was first diagnosed in 2012 and had a 7 day, 24/7 course of chemo using cladribine. My remission lasted 4 years, almost to the day. I recently completed another 24/7 course of cladribine and my oncologist says my blood counts are close to normal except for the red cells which are still low. These take the longest to come back. Are risks of secondary cancers, or reactions to the chemo common with hairy cell?