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Posts (5)

Feb 28, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Dear Pace, I had a septal myectomy for hypertrophic obstructive cardiomyopathy in November 2014. Despite the ordeal of surgery and recovery, I am so thankful that I went to Mayo Rochester. My mother was diagnosed with HCM when she was 61 and had an alcohol septal ablation. It was very ineffective, she survived to age 68 continuing to have symptoms, and had SCD. She did not have an ICD. I hope that you do. I have an ICD and I was diagnosed at 51 and I am now 56. I was the happiest person in the world to be going into the operating room, because I knew if I did not have the surgery I would not survive, I felt I had maybe less than a year. I am a registered nurse, and although I still have some chest and heart pain, I was able to return to work.
My primary reason for responding to you is that I did wake up INTUBATED. It was more uncomfortable, not really painful, just sore and of course VERY INVASIVE. Being a nurse, I knew immediately not to try to pull it out, they would have simply reintubated me. My oxygen saturation levels were very low. But the staff in CCU was very reassuring and kept me informed.
I now do yoga several days a week, and I wish I had had good breathing, relaxation, and meditation techniques prior to surgery, that I have developed in yoga. I don’t know the % of patients at Mayo who remain intubated after surgery. I can tell you that whatever your condition, or needs after surgery, they will make sure your care is outstanding. I knew they would not let me die. It is really the best medical care in the world.
I GOT MY LIFE BACK. IT WAS WORTH IT.
Please reply if I can help you.
Kindest regards and heartfelt best wishes for
you, Lisa

May 11, 2016 · Not able to overcome my anxiety and FEAR related to my HCM in Hypertrophic Cardiomyopathy (HCM)

I have an ICD also. My mother had SCD at my house. She didn’t have an ICD. I have always let physical concerns get the best of me, it affects me emotionally and at the same time I am so thankful that I had the surgery and I am better. I’m afraid I alienated the HELL out of almost everybody I know when I was so sick and not getting enough oxygen due to my obstruction. I’ve tried to make AMMENDS, but people can be unforgiving I’m afraid. Just looking for a way to get my life back

May 10, 2016 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

I was 54 when I had a cardiac septal myectomy At Mayo Minnesota. I was scared, but I knew it was my only chance. The surgery was a big success.

May 10, 2016 · Not able to overcome my anxiety and FEAR related to my HCM in Hypertrophic Cardiomyopathy (HCM)

I have Hypertrophic Obstructive Cardiomyopathy. I have gained some weight, about 15 pounds since my surgery. My hypertension has gotten worse due to primarily stress and anxiety. I have so many things to be thankful for, but I have not been able to overcome my anxiety and FEAR related to my HCM, and I need to move out of this mindset.

May 10, 2016 · Not able to overcome my anxiety and FEAR related to my HCM in Hypertrophic Cardiomyopathy (HCM)

Hello, I had surgery at Mayo in 2014, a cardiac septal myectomy. It has enabled me to go back to work, I am so thrilled.