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Posts (6)

May 11, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

I am taking part into a genetic program as my Daughter has this same cancer also have another relative that has it so we are looking into this,

May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

I am not able to go any where now because of my condition now and also would not be able to afford it,I also do not have a family that supports me ,they think nothing is wrong with me except for the COPD which they can see when I have trouble breathing ,so it is beyond me to go any where else, Sometimes we have no other choices

May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

I was diagnosed in July of 2014 and have been in Hospice now for 2 weeks (at home) but its due to my COPD not my cancer which enables me to continue my sandostatin shots ,I am still learning about Hospice as they have some hard to understand rules .Otherwise doing ok as well as I can!!! lol

May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

Yes it is hard to take this and understand all that is going on ,I was just
admitted to Hospice as I have COPD also and have bad exacerbations from it
and have been hospitalized several times with it so now they have put me
in Hospice,I am still wondering though if my tumors I have in my lungs
aren’t causing some of my problems but they do not make the effort to find out,I
am not capable of having surgery so I am really left hanging with no
choices, Good to hear from you ,keep in touch Ruth Ann

May 10, 2016 · Carcinoid cancer in Neuroendocrine Tumors (NETs)

I would like to be in voplved in carcinoid cancer only as that is what I have