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Jun 13, 2016 · Found out i have Myelofibrosis. What's involved in stem cell therapy? in Blood Cancers & Disorders

My husband has also been diagnosed with Myelofibrosis, started on Jakifi a week ago, no side effects yet, hopefully none will show up. Spleen enlarged, no appetite, lots of weight loss, fatigue and being tired all the time. Would like to get any information from someone else who has this rare bone marrow disease. Also life expectancy. He is 83 and has been told 4 t0 5 years depending on certain criteria. His age is against him for a bone marrow transplant or surgery to remove his spleen. Any input will be greatly appreciated from anyone.

May 28, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Thanks Coleen for your input. My husband’s disease is not considered leukemia but a disease of the bone marrow. Enlarged spleen, weight loss and fatigue. He has been on Tamsulosin for six weeks for his myeloid myelofibrosis but no reduction is spleen size. Possible addition of ruxolitnib but cost is out of sight. Clinical trials or financial aid a possibility. Yes I am a dancer, singer, actress but years ago. My husband and I were very active in musical theater, thanks for asking.

May 28, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Hi Nellieblue, My husband has been on Tamsulosin for his Myelofibrosis two capsules a day for about six weeks. Spleen very enlarged, lots of weight loss and fatigue. Spleen has not reduced in size so he is going to be put on ruxolitnib if we can get financial aid. The cost of this drug is out of sight. Will also ask our doctor about ibrutinib which you say has helped you. White cell count was 30,000 but that has gone down.

May 21, 2016 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

My husband has been diagnosed with myeloid Metaplasia with Myelofibrosis . White count was 30,000 and his spleen is also very enlarged. He is on Tamsulosin 0.4mg capsules 2XC a day. It has been almost a month and not any improvement. He is very tired, fatigued, no appetite as the spleen is pressing on his stomach making him feel full after eating very little. Lots of weight loss. Surgery to remove the spleen not advisable as his age is 83. There is drug Ruxolitinib to consider but cost is way too expensive. Does anyone else have this disease? It effects the bone marrow. Not considered CLL.

May 7, 2016 · Want to talk about Multiple Myeloma: Anyone else? in Blood Cancers & Disorders

My husband has myelofibrosis anyone else have this disease?