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Sun, Jun 2 3:46am · Cerebellum atrophy: No known cause. What do we do? in Stroke & Cerebrovascular Diseases

Thank you for the letters of encouragement and prauers for us. He see!s resigned to his fate and we are so grateful that this did not happen when he was still working or when we had kids in college!!!

Mon, May 27 5:09am · Cerebellum atrophy: No known cause. What do we do? in Stroke & Cerebrovascular Diseases

By the way, my name is Noreen and I am married to Howard. We have been married for 59 years this Dec. I think that he is ready to to go on to heaven as he does not complain or become anxious about the dianosis.. I cried and cried about diagnosis but I'm cried out and don't get morose about it all. I just pray that his passing will he peaceful.
Noreen

Mon, May 27 4:23am · Cerebellum atrophy: No known cause. What do we do? in Stroke & Cerebrovascular Diseases

He has had occupational therapy. But all they did for him was give a i of silverware that had fat grips.

Thu, May 23 4:30am · Cerebellum atrophy: No known cause. What do we do? in Stroke & Cerebrovascular Diseases

Our son bought his father an electric wheel chair which is run by batteries. He moves around with that. He just sits and watches TV. We are in an assisted living facility. We have a setting room and a bedroom and it costs is $10,000 a month😠 but he has a lot of help with getting to bed and bathroom. I would not been able to do it on my own . We also get three meals a day! I lost my driving privileges,so cannot go to the store or church. Noreen

Sep 30, 2018 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

Thank you for responding. The doctor at Mayo Clinic took many other tests but no spinal tap. He is progressing as the doctor said he would. Wheelchair bound at this time, but he has been tested for gluten and it came back negative.

Sep 29, 2018 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

My husband has been diagnosed with Cerebral Brain Atrophy. He was diagnosed at Mayo Clinic. He was given 3 to 4 years to live. At that time he was walking with no problems. It effects the balance and speech, and swallowing . He is now in his 4th year. He is wheelchair bound and has more trouble with swallowing. The doctor at Mayo said he would probably die of
Aspiration pneumonia as he has trouble swallowing.
I am so sorry about your son. My husband is 79 and at least this did not happen while he had a job and child in college. We are very grateful for that!
Please keep me informed. We have only found one other person who has this and she is in South Africa. I wrote to Colleen why there weren't more with this diagnosis and she said that it's very rare.
Noreen (wife of Howard James)

Dec 9, 2017 · Brachioradial pruritus. (severe itching on forearms and neck, no rash). in Skin Health

My brother-in-law had this and the only thing that helped this was putting frozen peas on his arms. The
doctors he saw had no answer and wanted him to see a psychiatrist. All of a sudden it went away and never returned.

Oct 8, 2017 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

Dear Liz,
I haven’t heard from you in a long time!!! Just a note to tell you that we are now living in Homer, Alaska. We are in our rainy season and it’s cloudy and overcast almost every day. It is depressing but we have bought a special light that Alaskans sit under to give sunlight and stop any depression which can happen. We will only get 4 hours of sunshine during the month of December. This will be our first winter here. We have sold our home in Michigan and will be living here full time. At least our daughter and family are only two hours away from us. She has 3 children and we enjoy going to their music recitals. I envy you living in S. Africa which is warm.
How are you doing? Have you progressed in the cerebral atrophy? My husband is still walking with a walker but sometimes he will get dizzy and just fall backwards. I do have trouble understanding him but he is patient and will repeat what he says. He still can bathe himself and we have a walk-in shower that we have a stool in. I also use the stool as I have a bad back that gives me pain. It’s the pits getting old!!! It is not for sissies.
I would love to write to you and send you a postcard from Alaska. I don’t know if you can post your address! But you could leave it at my email address.
Thinking of you,
Noreen ( wife of HowardJames)