Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (16)

Feb 20, 2019 · Weird symptoms in Brain & Nervous System

I go to a functional doctor in Tulsa Oklahoma actually Jenks which is a suburb of Tulsa. He tested and has a laboratory that works with him that has offered to do the testing for whatever the insurance pays and at the time my insurance did pay a little bit. It was a blood test and yes they did test for homocysteine levels and yes after that they told me that I needed methylated B vitamins. The folate thing was really eye-opening to me because I have been taking folic acid for years thinking I was doing a good thing and probably causing myself some trouble most notably anxiety! As soon as I got on the methylated B vitamins anxiety levels went way down like 85%. I’m scheduled to go back soon and they want to retest homocysteine levels because I was in the yellow zone not the red zone but definitely the little bit of a danger zone.

Feb 20, 2019 · Weird symptoms in Brain & Nervous System

I’ve been thinking about what you said that the symptoms went away while you were pregnant. Did you take prenatal vitamins? Also thinking about recently you said that your doctor mentioned that you were a little anemic. I recently read something about low Thiamin which is basically B1 vitamin – causing symptoms like yours. So, it’s worth an experiment (if it was me). Do you still have some of the prenatal vitamins? Wouldn’t it be something if what you have is a B vitamin deficiency? (Anemia is helped by B6 and B12) I have Hashimoto’s disease and one of the things that I do that makes me feel better is to take methylated B vitamins. One of the things in my particular case is I have a genetic predisposition not to metabolize folate properly. (2 copies of the MFTHR gene – hope I got that acronym right!). So I get all kinds of weird symptoms including panic attacks, tenseness, etc. but when I take the methylated B vitamins much of that melts away within hours! What happens is I get to feeling better and I forget to take the B vitamins and then I have to start all over again but it always works! Anyway thought to mention it I keep thinking about you and I do hope you’re finding some relief.

Feb 14, 2019 · Weird symptoms in Brain & Nervous System

My husband had a similar thing with the bladder. He had acquired a taste for chocolate milk and donuts. The constant influx of sugar cause tend to develop interstitial Cystitis. We spent $5000 in an out patient procedure that did in fact confirm the diagnosis. He was given medicine that cost over $200 a month and didn’t really stop the pain in the bladder nor did it stop the frequency urges. He decided to do an experiment and quit eating chocolate milk and donuts on a regular basis. Within one month he no longer needed medicine. Bladder healed. We found out later that he has hemachromatosis which when left untreated causes all the organs including the pancreas and the heart even the brain to become weekend by excess iron. Even if you had hemachromatosis you’re too young to be experiencing the cumulative effects – plus your are female. (Menstruation offers a bit of protection from accumulating too much iron) But sugar could be playing a role and/or your particular metabolizing of sugar.
Another thought just an idea you mentioned this has been going on for about two years so you must go back those two years with your diary and anything you can think of that you’ve done in those two years again the least little thing different if you can remember write it down – For instance have you had any immunizations during the past two years / at the beginning of the symptoms? If so write those down – what kind of shot, when you had it, when symptoms begin to occur, etc. I had to take a booster shot for Tetnus in order to qualify for a volunteer program I was going to a disaster area – I had similar symptoms similar to the heaviness in the arm that you describe where the shot was given. Throwing out these ideas to help you search your memories for any little thing that may seem insignificant.
But the tingling you describe reminded me of what my husband used to say when he was overloading his body with all that sugar and his pancreas no doubt wasn’t keeping up and he had the burning and the tingling in the feet and the toes and the bladder thing .
Pardon the long post but another thing that is highly suggested? Read all you can on the healing effects of Turmeric. Look into digestive enzymes and proteolytic enzyme‘s. You might try illuminating soy wheat and dairy from your diet and your sugar! A week to 10 days as an experiment may offer up some relief – you will notice if you feel any better. Likewise with vitamin D three most of us are deficient. These are just natural things that certainly can do no harm and they may very well make you feel better. It’s amazing how our bodies can heal when given the bright building blocks!

Feb 13, 2019 · Weird symptoms in Brain & Nervous System

In the meantime it is strongly suggested that you make a journal or diary if you will, document the times and days and what you’re doing when it occurs because many times we get to the doctors office and we forget. I would include the camping trip where you went geographically if you went swimming if you drank or swallowed any of the water accidentally even. The least little thing might give the doctor an idea of what’s going on and a direction to look – it may seem insignificant to us and it may very well be the key to unlocking the whole puzzle. If you’ve had any fevers that come and go, anynausea, brain fog – any little thing that might seem insignificant any tiredness any muscle stiffness any joint aches and pains no matter how fleeting, try to write them down and remember when it all started. I live on a farm and I’m a great outdoor enthusiast as is most of my family living in several different states. Many of us have had sudden onset symptoms such as what you described because we are outside and we are exposed to the bites of ticks into the amoeba and bacteria and viruses of unfiltered water. Generally there will be a fever associated with these diseases that one can acquire from enjoying the great outdoors. My brother-in-law who is 6 foot seven and right at 200 pounds the most physically fit man I know and strong as an ox had symptoms like yours only accompanied by a high fever. He had acquired a disease from a tick that the doctors didn’t even recognize they weren’t quite sure what it was it wasn’t Lyme disease they knew what it wasn’t! Still they were able to do an assessment and with treatment it took about a month to six weeks but he’s as right as rain once again. Hang in there! So glad to hear you’re going to make it to the doctor. Please share what you learned and especially any good news about what makes you feel better!

Feb 13, 2019 · Weird symptoms in Brain & Nervous System

This sounds more like Lyme disease. Lyme disease comes from being bitten by a tick and it progresses over the years so you may not necessarily remember being bitten. Lyme disease is difficult to treat and not all doctors really know what to do. Lyme disease however is far more treatable and can be cured. There are early symptoms like a rash that comes within the first few weeks after being bitten by the tick. And there are mid stage symptoms and then there are symptoms after the disease has progressed for years. If what you have is Lyme disease it sounds like you have more of the middle or later stages of the disease. I’m not certain where you live but depending on where you live finding a doctor that can test for Lyme disease can be more or less successful. The East Coast seems to be the best place to find doctors that can deal with the successful eradication of Lyme disease. I’m sure mayo clinic might also have some very good treatments for Lyme disease – should you discover this is in fact what you have.

Feb 6, 2019 · Horrible Hives in Skin Health

I live in Missouri also and I agree nobody knows anything here, and unfortunately they’re not likely to anytime soon. ( my humble opinion and experience over the last 15 years) I go and visit a doctor in Oklahoma it’s 500 miles one way but I have family there and so I make it a time to visit and a time to get help. There is a functional doctor just south of Tulsa Oklahoma and I’m happy to share the information with you if you like. It looks like the Mayo Clinic has posted some good information for you as well – of course the mayo clinic is like the gold standard. I once knew a young man who was diagnosed with multiple sclerosis – he was young and he had basically begin to resign his life, had five small children . He decided to go to the Mayo Clinic where he found out he didn’t have multiple sclerosis at all and that he would live a normal life! I don’t know where you live in Missouri but another suggestion is Iowa city . Iowa city has some very good doctors, and perhaps use more of a functional medicine approach than many mainstream doctors.
But seriously one of the best things we can do for ourselves… is the 10 day jumpstart diet where we eat nothing but veggies raw or cooked or fermented. We have been exposed to so many genetically altered foods that were grown with pesticides that our bodies eventually say enough ! I Once ate a single soybean raw from my brother-in-law’s field here in Missouri and had hives for two days. Why? I just wanted to see what it tasted like. Did I know it was laced and genetically engineered to include the pesticide Round Up? No! Our bodies can get rid of an amazing amount of poison and toxicity but we have to give it a break and it starts with our digestive system and lots of good water . Eat organic for those 10 days if you can and add back foods one at a time, to perhaps find the allergen that’s causing the hives – most likely. Please share what works for you WHEN you find the solution – and you will. You may be very surprised at how simple the solution is and how sad that doctors won’t or can’t, tell you.

Jan 20, 2019 · Horrible Hives in Skin Health

Almost everyone is Vit D3 deficient today, and that is certainly true for those of us with Auto-immune disorders. (Hashimoto's, Fibromyalgia, Chronic Fatigue, etc. all the new diseases are really different manifestations of autoimmunity, most like brought on by antibiotic use, poor diet, pesticides, pollution, etc.) Most endocrinologists test for thyroid problems by measuring not only T3 and T4, but TSH (thyroid sending hormone). Those are blood tests that almost never prove anything conclusively. What finally tipped the scales for me, was a urinalysis testing for "antibodies" in the urine. They were there and "bingo" – you have Hashimoto's. (They had me collect urine for a week! – but that was 20 years ago) Yes, they touched my throat (searching for a goiter) and never found anything. There are so many women (especially) who tell and re-tell this same story over the decades. That of testing the blood and being told nothing is wrong. In Europe the Dr.s go strictly by TSH – if it's over 10 you are given Synthroid / Levothyroxine. (Incidentally, a site name "HealthUnlocked" is a great social media type site to share what works with people from all over the world!). In reality, you are very sick at 3 or 4 TSH. (That was my "borderline" diagnosis). I have had TSH as high as 40 and in the ER with "malignant hypertension". The thyroid is a serious thing to leave untreated if it becomes diseased. On the bright side, there are many ways to treat such diseases, if only one can find a Dr. that will listen, and not just look at blood tests. Eating clean helps. Healing the gut helps, Cleansing the liver helps. Oil of oregano helps. Olive Leaf Extract helps. Vitamin C, Selenium, Zinc, Vitamine E. Do you have any signs of hair loss (eye brows, lashes?), achy joints, dry skin?

Jan 7, 2019 · Horrible Hives in Skin Health

Having a diagnosis of Hashimoto's, one then must begin on a great education. This site is one of many that offer those who share what they have learned about living very successfully with the disease, some even claim that they have "cured" or greatly reduced all symptoms. Until you do learn by trial and error what works for you, It is highly encouraged that you do take the Synthroid (T4) if it works for you, or the many (T3 T4) natural combination medications, like Armour Thyroid, or NatureThroid.
One of the many things that you will learn about is "gut health". In my 30 year battle to regain health and quite a measure of normalcy with Hashimoto's, gut health is always there at the center. Adding natural gut fauna and flora to the digestive tract is one way to nurture the gut. Learn to make your own saurekraut, or kimchi, or any one of a number of other naturally fermented foods and eat at least 1/2 cup of these things daily. Kombucha Tea is another fermented drink that has now become quite available to buy at everyday big grocery stores (that have an "organic" / health food isle). One doctor told me that if you buy saurekraut, do not buy it in plastic or tin, but only in glass (apparently the plastic and tin bring bad things that outweigh the good of good bacteria). Staying away from antibiotics, alcohol, gluten, dairy, and the list goes on is another way to protect "good" gut bacteria that can be destroyed by these things / cause hives. My son gave me a gift of a "canning jar" type fermentation kit that came with a bunch of recipes. Cabbage and salt and time (as in 21 days) are the 3 main ingredients for home-made saurekraut. Functional Dr.s are the best type of Dr. to help you win the battle with Hashimoto's. They treat the person, and yes, use blood tests, etc. but they also listen when the patient says, "I feel worse" or "I feel better". I've come to know that hormones (thyroid, estrogen, progesterone, testosterone, and more) also play a big part in healing. Vitamin D3, selenium, methylated B Vitamins, and Vitamin E are essential in returning to health. Even if you do not suffer from indigestion, consider adding digestive enzymes to a daily vitamin regime. Remember, the disease is centered in the gut. Consider what many call a "10 day jump-start" of fruits and vegetables only (both raw and cooked and fermented) to "re-set" the gut. Not advocating a vegetarian diet, but again, giving the gut a rest while it heals. As you return to eating other foods after the 10 days, you may notice (if you add back different foods gradually) what agrees with your gut, and what does not.
I personally have learned that I have two "weak" MTHFR genes, in a genetic test performed by my Functional Dr. Notice I did not say defective. In this day and age of pesticides, GMO, and other pollutants and foreign agents that enter into our food and water, I have what Dr. Ben Lynch described as "Dirty Genes" (in his book with the same title). I must take special care to eat "clean". (More of the veggies, less of the sausages, cold cuts, processed food and GMO grains). Page 119 of Dr. Ben Lynch book on dirty genes discusses hives in connection with a dirty DAO gene.
All of the above is not easy, and my busy lifestyle of a working mother, grandmother, highly active volunteer, living on the farm, does not lend itself to indulging in hours of pampering of self, nor planning macrobiotic meals. So, I may never be fully healed. I may have to settle for feeling good for a greater percentage of the time. What I do know and have experienced is that it is possible! It has been years since I experienced really bad hives (which are scary), and looking back, it was in conjunction with what was most probably some other disease associated with a tick bite. So, Hashimoto's in combination with any virus / bacteria / fungal type infection stacks up to a body that screams in a "hive" way, "do something".
Why do more women than men suffer from Hashimoto's? Why does the percentage (some estimates are that a much as 40% of women worldwide suffer from some form of autoimmune disease (fibromyalgia, lupus, chronic fatigue) of those who suffer with Hashimoto's increase every year? Why is it that main stream Dr.s do not understand Hashimoto's, nor seem to care about learning? (including endocrinologists!) The answers to these questions and similar are elusive at best, criminal at worst. That is why we must treat and educate ourselves with diet, lifestyle modification, vitamins and herbs.
Read, read, read everything you can get your hands on as to restoring gut health. Find a functional Dr. Share what works for you – please.