,,,thank thee soooooooooooo much for your response, “kp” … think have finally figgered out a wee bit bout using this site! ????? MEBBE!
have to admit since i wrote …. mucho fatigue! still hootin with virus caught befo Cmas. aaaaaaargh! However …. have a wonderful N.P … my primary …. we have a plan. She feels we go on n get bwerk dun as planned with additonal tests added (She has one patient .. MUCH MUCH younger than I who has MG and multiple other things with which she struggles …. so young.) So Jenny is more familiar than most docs with this. After the bwerk ….. and in the meantime ….. she is scoping out Dr. i mentioned in Durham at UNC … acutally is head of Neurology there. And at this time that is about as pro active as i can be. She feels and i do concur that the PPS may present a roadblock to full diagnosis. Fatigue is a part of PPS also. Right now … tis so at play ….. hard to do more than jes this short paragraph! AND … we are both revisiting a year ago when was hospitalized with dble pnu moan y. MASSIVE STEROIDS put in play even after five days in hosp ….. i decide i jes didna wanna die that way so after a week … QUIT EM ALL! HO! took months to recover …….. only AFTER hosp and five weeks later did the culture from Pul Doc come back wtih positive fer MAC-K. am wondering if that could be at play now …. so hard when a virus that mimics something else is invading yer part uv th werld if tis that er “dem bugs”! n so we muddle along.
To EVERYBODY …. if you cannot find some HUMOR in yer sityashun …. find some one who can …. or stay connected to someone who IS funny.
AND ….. Lafftah helps clear our dem lungs! mah wee dawg Rosy an i have a sing fest evry single day … i howl n she howls an u know whut? we kin akshully Harmonize! B u t FULLL eee! later snoopy!