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Dec 29, 2016 · Myasthenia Gravis* in Autoimmune Diseases

,,,thank thee soooooooooooo much for your response, “kp” … think have finally figgered out a wee bit bout using this site! ????? MEBBE!
have to admit since i wrote …. mucho fatigue! still hootin with virus caught befo Cmas. aaaaaaargh! However …. have a wonderful N.P … my primary …. we have a plan. She feels we go on n get bwerk dun as planned with additonal tests added (She has one patient .. MUCH MUCH younger than I who has MG and multiple other things with which she struggles …. so young.) So Jenny is more familiar than most docs with this. After the bwerk ….. and in the meantime ….. she is scoping out Dr. i mentioned in Durham at UNC … acutally is head of Neurology there. And at this time that is about as pro active as i can be. She feels and i do concur that the PPS may present a roadblock to full diagnosis. Fatigue is a part of PPS also. Right now … tis so at play ….. hard to do more than jes this short paragraph! AND … we are both revisiting a year ago when was hospitalized with dble pnu moan y. MASSIVE STEROIDS put in play even after five days in hosp ….. i decide i jes didna wanna die that way so after a week … QUIT EM ALL! HO! took months to recover …….. only AFTER hosp and five weeks later did the culture from Pul Doc come back wtih positive fer MAC-K. am wondering if that could be at play now …. so hard when a virus that mimics something else is invading yer part uv th werld if tis that er “dem bugs”! n so we muddle along.
To EVERYBODY …. if you cannot find some HUMOR in yer sityashun …. find some one who can …. or stay connected to someone who IS funny.
AND ….. Lafftah helps clear our dem lungs! mah wee dawg Rosy an i have a sing fest evry single day … i howl n she howls an u know whut? we kin akshully Harmonize! B u t FULLL eee! later snoopy!

Dec 27, 2016 · Myasthenia Gravis in Autoimmune Diseases

Am i replying to mahsef? HO! nelisabeth

Dec 27, 2016 · Myasthenia Gravis in Autoimmune Diseases

i do not know evidently! HO! how to mangage this site! any help will be welcome! posted my msg re: MG several days ago.
i guess i was too soon smart and too late dumb! nelisabeth

Dec 22, 2016 · Myasthenia Gravis* in Autoimmune Diseases

I have posted earlier in the MAC group but have just this week been told i need to be tested for Myasthenia Gravis. aaaaaaaaargh!????
Eye Dr. thought it was necessary to git er dun now. Have appt for bloodwork on the 5th of Jan. … fasting …. but i have learned that it does not always show up in bloodwork. ????? The bloodwork will not be back when I see my primary care doc on the 10th. Have hip replacement surgery scheduled for the 23rd. A friend whose mother struggled with and finally died from this auto immune “thing” recommended a Dr. James Howard … neurologist at UNC in Chapel Hill. i live five hours away! I have put in place all that was suggested to me in the forum on MAC. Have a date with ID doc in winston on the 6th. Also deal with PPS .. post polio syndrome. I am 76 years old an got the Polio virus when i was 4 during the epidemic here inN.C. Spent 7months in the “camps” that have been called The Miracle of Hickory, N.C. Learned to walk again an my parents NEVER treated me as a victim of anything … ergo i have never percieved myself that way! Have always been VERY active and an activist! . I have been attributing things that are new and “not nermal” HO! fer me to PPS. Am not sure anymore what is the right question to ask! My friend said Dr. Howard invented the machine that can test for this “thing” that will not make you feel lak you b gittin electrocuted! I have had tests that feel just like THAT several times in the past. PPS being the answer. Here’s a question. Do you know someone in Winston Salem, perhaps, a neurologist who is closer? Am supposed to have hip replacement surgery on the 23rd Jan. 2017 after having had to cancel surgery the 19th of this month as i got sick! I am SO GREAT FULL for this site. Thank you for this site!!!!!!!!!!!!!!! Merry Merry evrybody!


nelisabeth again … gon werry thee to deaf! HO! HOW do i find out where Dr. David Priest at Novant in Winston Salem is
the doc fer me? I liked him but was too sick to make much sense of what he said. My niece was with me and she, too, had a hard time …… we came away thinking the “bugs” were dormant.???????? another question ….. nothin ever shows up on plain x ray …. only the CT/contrast. Is there a dormancy period? okay …. off and at em!


…have already begun and man oh man am gittin th runaround! there is, however, NOTHING lak an EMPOWAHED WOMAN! nelisabeth and DID git printed out …. safely and attached to mah new book of evry step i take!


Yes ….. Nebraskanse …. sp? The Pulmonary doc who identified it said i MUST go NOW to see I.D. doc which i did but he could not read the
scan …. puter incompatible. nelisabeth. gittin on it TODAY! HO!


Oh Katherine, I cannot tell you how much this means to me! Have always been an advocate for others …. have tried to be for myself … but there is a terrible lack or lapse …. dunno .. of communication between doc to doc and computer at hospital being incompatible with other systems. aaaaaargh! so we all have been flying blind. It was already in my thinking to request a new
sputum test from the new Pulmonary doc here. I WILL DO THAT. My N.P. WILL cooperate. She is truly an advocate.
Thank you sooooooooooooooo much and yes, will see if kin figger out how to copy this off .. .if now will save. and forward to
docs. May i keep you posted? I do NOT believe i can any longer tolerate the steroids. At age 76 …. headin fer the big ol 77 ….
sometimes less is more. I so agree. Wish i could hug you in person!!!!!!!!!!!!!!!!!!! Peace …. me ol nelisabeth