Fibromyalgia totally sucks; I got it in 2000 after being rear-ended by a guy who just wasn’t watching. From what you’ve told us, chances are SSDI will want to see some sort of medical evaluation since you’re only being followed once a year. I don’t know if it’s to your advantage to set something up with YOUR choice of doctor(s) versus waiting till THEY do. It’s hard to even figure things out when you’re tired and in pain-I think having a lawyer to help is a very good idea!
My only experience with SSDI was for my son (adopted from Russia with fetal alcohol exposure, which isn’t on the list yet) who has multiple potentially qualifying problems. They said that while working might be difficult for him, there were surely some jobs he could do (in so many words.) We would have had to show that it was out of the question for him to show up on time, focus for at least a few hours, etc. He’s now in an audio engineering apprenticeship program-turns out that once he went through rehab and sobered up he could work a lot harder!
My understanding is that they finally decided FM was disabling-duh-but it’s still hard to prove. I haven’t filed because my spouse makes a good enough income to support us both and I don’t think I have recent enough work experience to qualify, not having worked since said kid with FASD arrived. Keep working on this, and remember your value as a person does NOT depend on whatever the government thinks!